Health

Stuart2412
Stuart2412 Online Community Member Posts: 14 Listener
in Everyday life

Hi everyone I had a bad week you all no I have mpn about to have a bone marrow biopsy and start injections every 2 weeks to help the pain now I have a catheter and I had a uti infection have catheter taken out and put back in by a district nurse which caused me to bleed taken to hospital to sort it out as if life is not bad enough

Comments

  • Bluebell21
    Bluebell21 Online Community Member, Scope Member Posts: 11,605 Championing

    Hi @Stuart2412 I am so sorry you are having such a challenging time.. It can certainly feel that when one thing is a challenge something else decides to jump on us as well.

    I hope your catheter is now sorted and settling down.

    Please take care of yourself.

  • Stuart2412
    Stuart2412 Online Community Member Posts: 14 Listener
  • Stuart2412
    Stuart2412 Online Community Member Posts: 14 Listener

    Hi thanks for the support but I'm about to have a bone marrow biopsy and about to be told it progressed but thanks anyway

  • gussiefinknottle1
    gussiefinknottle1 Online Community Member Posts: 14 Listener

    Stuart, question for you is your MPN a mylodisplastic syndrome? I ask because my partner has CMML which is both mylodisplastic and myloproliferative and it could be beneficial for us to connect if this is the case.

  • Stuart2412
    Stuart2412 Online Community Member Posts: 14 Listener

    I have myeloproliferative disorder essential ET and a our to start injections every 2 weeks my platelets are very high

  • gussiefinknottle1
    gussiefinknottle1 Online Community Member Posts: 14 Listener

    Hi Stuart CMML platelet count for my OH was the opposite he’s on injections every three weeks, it did take quite a long time before his platelets started to increase and is now normal and has been for a couple of months. He has seven days of injections of azacitidine then 20 days off followed by another seven days excluding weekends, and is about to start round number 14.

    if this is your first round of chemotherapy and they give you anti-sickness pills they do cause constipation so it might be advantageous for you to Eat plenty of fruit and vegetables my other half has been eating figs and prunes chopped up and added to his breakfast cereal, and also taking fibre gel regularly but still gets some constipation from the pills. Take a look online and look for ispaghula husk this is the active ingredient in fibre gel and is much cheaper than the branded product.

    wishing you well

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