Access to work doesn't make sense

jayCeed

Hey all,

Posting this in here for some advice or to know if I'm barking up the wrong tree.

Anyway, sadly, I have a incurable condition (FSHD) that seems to get worse every year.

I currently use an NHS supplied carbon fibre split - a AFO for short. But due to my weakness travelling up my leg they just don't work the same.

As my job as a journalist is active and requires me to travel, stability is key. Also, going up stairs etc is a must as not every place is accessible.

So I've been recommended I go down the private route and found an orthotics which is everything I need. Everything is groovy bar the price, which comes to 14k. I mean it has everything (stair mode, everything).

I put in two requests for the access to work scheme and were rejected as they don't offer personal aids... Fine, but they said I could get a wheelchair - probs one of the most insulting things ever said to me.

As far as I can see, an electric chair is also a mobility aid?

So I just want to know is has anyone got something like this on one? Or any other places to try and raise a bit of money (grants or stuff)?

Thanks,

JC