Hi, my name is Gollysgirl!

Gollysgirl
Gollysgirl Online Community Member Posts: 4 Listener
in Start here and say hello!

Hi.. what a great idea this online community is. It will be so nice talking to like minded people who understand what it’s like living with a disability..

Comments

  • Lola_lou
    Lola_lou Online Community Member Posts: 4 Listener

    HHello I'm new to, trying to navigate through everything atm, so welcome Gollysgirl 🤗

  • chiarieds
    chiarieds Online Community Member Posts: 17,155 Championing

    Hi @Gollysgirl & @Lola_lou - & welcome to the forum. I'm sure you'll find it very friendly & supportive as I do. Just give a shout if you have any difficulty finding your way about 😊

  • Gollysgirl
    Gollysgirl Online Community Member Posts: 4 Listener

    hi @Lola_lou

    Thank you for your message and welcoming me to the community..

    I’m. Sure I’ll speak with you quite a bit..

    xx

  • Gollysgirl
    Gollysgirl Online Community Member Posts: 4 Listener

    hi @chiarieds

    Thank you for your lovely welcome. I’m sure I will find it supporting, which will be so nice as I’ve strutting get the understanding and support from anyone..

    look forward to talking you

    xx

  • Albus_Scope
    Albus_Scope Posts: 10,798 Scope Online Community Coordinator

    Heya @Gollysgirl and welcome to the community.

    So what brings you here today? If you need help with anything, please just ask away and we'll all do our best to support you.
    Or if you just fancied a light hearted chat, or a few easy games, I'd recommend checking out the coffee lounge and the games den.

    https://forum.scope.org.uk/categories/coffee-lounge

    https://forum.scope.org.uk/categories/games

  • Gollysgirl
    Gollysgirl Online Community Member Posts: 4 Listener

    hi @Albus_Scope

    Thanks for your message..

    I joined up because I wanted to be able to talk to people who might just “ get me “.
    I’ve been in this position for 2 years and 7 months.. being classed as disabled has totally changed my life.
    I was the care worker who looked after people and now I’m the one with a Carer.
    I don’t feel like me anymore., 😢

  • Albus_Scope
    Albus_Scope Posts: 10,798 Scope Online Community Coordinator

    Well you're certainly in the right place @Gollysgirl there's loads of like minded folk here who are always up for a chat and will know what you're going through.

    It's a very odd feeling when you wake up and it dawns on you that you're disabled now, but it doesn't mean it's the end. Loads of us still live amazingly fulfilling lives, we just needed to make some alterations to how we do things. So please try not to sit with the negatives for too long, you'll find yourself again, it just might take a bit more time. ❤️

  • chiarieds
    chiarieds Online Community Member Posts: 17,155 Championing

    I've often said that for me having a herditary disorder has perhaps been easier as I've never known any different. Unfortunately it has worsened (the hypermobile type of Ehlers-Danlos Syndrome) as I got older, but, altho I am, I don't particularly think of myself as disabled, just a person that happens to have hEDS (the shortened form of the mouthful above).

    For different reasons I lost myself & any confidence I'd had, but found that I was still in there; the same person, just perhaps a little different.

    A long time ago I was a physio, & now I do the exercises I used to teach! But the physio in me never left, any more than the carer in you will have left. Both my family & this forum have helped me, & now with more time on my hands I try to help & support some of our members. We all have different disabilities, but this forum is where we can share our problems & support each other because so many of our members do indeed 'care.'

    It sounds to me like you'll fit right in here, & have many qualities that will help others, & perhaps, like me, that will help you find yourself once more 😊

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