FMS + Chronic Daily Headaches

Nashota

Oops I forgot to @Mary_Scope sorry!

Rachel_Scope

Was it a bad reaction @Nashota? I hope you're ok! That's so frustrating that they dismissed you like that. Good on you for asking them to add it to your records, not that you should have to do it in the first place.

Nashota

My lips swelled, throat tightened, it worsened my IBS, reflux and so on, thankfully I didn't need to have a trip to the hospital. Thanks for asking :)

Rachel_Scope

Oh that sounds scary @Nashota! Sorry it's affected you so badly, but very glad you didn't have to go to the hospital.

Nashota

It was but it's ok, it just needs to be reviewed.

I've had to address issues from the last medical centre, I was looking through my old tests, notes and such and I noticed a scan I had in 2018 on my neck (I mentioned swollen glands in this thread I believe), it confirmed that I have chronic bilateral gland inflammation (no blockage), only this was never told to me nor was it addressed in any appointment and when I tried to speak about my glands I was dismissed and was even told your glands swell when you are ill, she never bothered to check my records.

On top of that I realise that 2 specialists have said I have mallampati class 4 which is when they can't see your throat because your mouth is over crowded, so these issues probably explain my swallowing issues.

I've also addressed Sjogren in the info I sent as the gland issue can point to it and even though my ANA and the other test came back negative in 2021 I think it was, I read that it could be Seronegative Sjogren. The staff at the current medical centre are going to love me lol. I've asked them to make the two findings clear in my records as I keep being offered tablets and capsules and have asked about Rheumatology with me being housebound.