Hello again
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Thanks, didnt think anyone would be awake. Thinking of you too.
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Hopefully the doctor turns up. Good you are getting some sleep!
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good morning to everyone cold start can notice difference in money have put on smart meter gone up a lot try too wear thicker clothes help bit
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I thought i'd try 1 piece of toast this morning as i'm so hungry. 10mins later I threw it back up again and nurse had to come running with anti-sickness. Day 15 with no food.
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Your welcome @rubin16
Most nights it takes me ages to sleep
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We are all wishing you well @rubin16
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The consultant just came round and assessed me again, hes going to put me on a drip. But has no idea why my body is refusing food. He has to run lots of tests on me to check for things and see if i'm intolerant to anything. He also said they have referred me to the dietician a few times but they declined the referal as you have to meet certain criteria i.e try all drink options. He said now we have exhausted those options they should come and see me tomorrow.
He also said about that enema thing that it shouldn't be a concern as that part of the bowel is redundant and not being used as I have an ileostomy, and if some crohns is flaring somewhere where they missed then the infusion of ustekinumab should calm it down again and sort out.
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Wishing you so much future health and happiness, take care. Thanks for your messages
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Reads like somethings are about to happen which is good news. Hope it all goes well as you need a bit of luck now!
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Good luck with all the tests @rubin16
Everyone is thinking of you
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Fingers crossed. And thanks for all your messages so far, means alot to just get things off my chest that is happening and knowing there's people who care and listen.
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keep us updated, fingers crossed you will get some answers. Hope the drip helps
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Thanks for your message. I'm on the drip now continually for 12 hours then they replace it, hopefully it perks me up abit. Fingers crossed. I'll keep you all updated along the way, i'm also using this to keep a record of whats happening.
It does mean alot that you guys care and listen, so really thankyou.
Take care.
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It’s completely understandable that you want to keep a record of everything, and I’m really glad you feel listened to — you’re definitely not alone here.
By the way, if you’d like, we can ask the admin team to change the thread title from “Hello Again” to something more specific, so others can quickly see you’re currently in hospital and pop in with more support. Just let me know and I can request it for you, or if you prefer, you can ask them yourself.
Take care and rest as much as you can. I need to get going now as I’ve got a few things to sort for work tomorrow, but I’ll check back in soon.
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You could do that I don't mind but itwould probably make things easier to find. It just wasn't my thread to begin with and just kinda ended up putting everything here so it was in one place.
Thanks.
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I'm so glad your consultant has seen you today Rubin, and that a dietician might come tomorrow. I hope the drip perks you up too in the meantime and I'm relieved you're on that. Thinking of you and sending my very, very warmest regards to you.
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Thankyou, warmest regards to you too.
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I've had the best nurse today who has been looking after me, shes been getting medication for me right on time, got the consultant to see me in the morning, does anything i've asked for and been checking on me to see if I need any meds or anything. Really does make a difference when you have a good nurse.
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Thankyou, I'm more hopeful now. I was panicking this morning hopefully things happen tomorrow as I just want to be well and go home.
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