Hemocromatoesis

garrylaidler1982

iv only had this a year . And learning more each day . I’m suffering with really bad fatigue and my ankles and hands and wrists really hert. Iv given my job I loved up as I cannot dig holes and do the call out hrs anymore. My memorie is getting worse each week . And I’m now struggling with money , don’t no we’re to go next for help as I’m just going round in circles. Iv worked all my life and never claimed anything. Where do I go next as I’m fed up and giving up

garrylaidler1982

Kimi87

I'd recommend contacting a local welfare rights organisation, who can go through everything you may be entitled to and assist with applications & forms

https://advicefinder.turn2us.org.uk/

There is also a charity for the condition

https://www.haemochromatosis.org.uk/helpline

Mary_Scope

Hi @garrylaidler1982 and a warm welcome to the community from me!

Sorry to hear you're in so much pain and you're feeling fed up.

Kimi has given some great links which I hope you will find useful. There is also a Benefits Calculator that is worth doing as this will be able to tell what benefits you may be entitled to based on your situation.

A member of the team is going to send you an email shortly, please keep an eye out for it.

Doglover2

@garrylaidler1982 My brother in law is a sufferer, its awful ,the pain he's in the fatigue and the rest . I hope you can get sorted pain wise and money wise. Very best wishes.