Hi, my name is PAIN247365!

PAIN247365
PAIN247365 Online Community Member Posts: 2 Listener
in Start here and say hello!

out of desperation I've come to you,.

she's not the same any more, i mean Before she was in a bad way with pain I'm Shure you all are in the same way,.

but to deny, good pain meds that did work morphine ect to be taken off them

in my opinion is inhumane ,. we are in Cheshire east,

and to Deny even sleep, is sick,

she's on loads of other meds,,

like probably most of you,,

there has to be another way,

thanks for you time Neil

Comments

  • luvpink
    luvpink Online Community Member Posts: 3,932 Championing

    @PAIN247365

    Hi

    Welcome to the community.

    Who is "she"?

    What help are you looking for on scope?

  • Holly_Scope
    Holly_Scope Posts: 4,794 Scope Online Community Coordinator

    Welcome @PAIN247365. I'm so sorry. It's awful seeing someone you care about in pain. Is this something that the Doctors have stopped or they've decided themselves?

  • PAIN247365
    PAIN247365 Online Community Member Posts: 2 Listener

    i`d please like a way to help save the metal heath

    of some one who has all but given up,.

    her hain meds were taken off her,.

    after her last brain operation

    she was given Morphine

    her own doctors blocked her pain Medication

    she came home after brain surgery

    Going COLD TURKY

    from Morphine

    becose her doctors blocked it,.

    But they Blame the Pain Clinic,.

    Donna Lord

    Wow Don`t get me started,.,

    julies not Evil

    shes always nice even when your getting Kicked in the back Every Micro second of every day

    i`m just saying

    all the very best,.

    i`m sorry i went on,.

  • chiarieds
    chiarieds Online Community Member Posts: 17,434 Championing

    Hi @PAIN247365 - I'm so sorry for what you are going through Neil with your absolute concern about her.

    No-one should go off morphine cold turkey. It should indeed be a very controlled way of coming off it very slowly.

    I speak as someone who came off fentanyl patches (morphine), which I'd been on for several years, incredibly slowly. I decided to do this myself (tho it should always be done with a Dr's guidance) because of adverse effects.

    Please don't ever apologise; you are obviously concerned, & it's affecting you both because you care.

    I had been some time later rather surprised after coming off morphine that my pain levels hadn't increased…. I was pretty much the same.

    Pain is a very difficult thing, & meds like morphine help initially, but not with long term or chronic pain. She hasn't been helped in the best way, but there are things that can help.

    It might sound odd, but looking at things in a different way may help. We're all individuals, & what may help one may not help another, & unfortunately it can take time to work out what's best for each person. It has been found that often it's a combination of things that better helps, so it can be a bit of 'trial & error.'

    Please see:

    https://forum.scope.org.uk/discussion/102784/resources-and-tips-for-those-living-with-chronic-pain

    Personally I've found that diaphragmatic breathing always helps (the deep breathing bit), as it's known to reduce pain, which is my mainstay, but also anything that distracts me from pain too.

    Hoping some of this helps, & we're always here to support you too. One of the most difficult things is to see someone in pain, & feel you don't know how you can help them.

Categories