DLA change of circumstances - moving around

daisy_blue

Hi, I just received a DLA form and it is so confusing to complete. I have a child with serious condiiton that affects the way his bowels are working. the section calls help needed during the day - his needs are unpredicatable, going from needing help five to six times a day to 20 changes a day. I dont even know what would normal be as all I am doing is washing clothes, washign him and helping to change and / or encourage him to go to toilet. it is constant struggle from helping to get dressed to brush his teeth, putting him to the bed, washign him. does not want to eat i always struggle .. how often they need encouragemnet to get out of bed? do i say 10 times and takes about half an hour? there are series of questions - i need some gudance here. best

chiarieds

Hi @daisy_blue - I agree with Catherine - you just have to say it how it is. There's some good guidance here: https://contact.org.uk/help-for-families/information-advice-services/benefits-financial-help/disability-living-allowance/

daisy_blue

thank you so much for the help and sharing your own expericnes. Would they be considered for mobility rate, if we have to cut our trips short to come back home as he would refuse to go to toilet, drag himself on the floor if he poops and refuses to get changed? It takes us ages to leave the house. As we think we are ready to go but there is an accident, you clean and then there is another one, go back to beginning. he always needs superviison as depsite his age he barely communicates his needs, unless we check and notice he does not say he wet himself or pooped.

daisy_blue

Hi, thnak you so much for the advice on how to complete the form.

What does mobility part requires? I feel like we are on the grey area.

I also wonder if anyone has delat with incontenency and if ever he will grow out of this?

Kimi87

A local welfare rights organisation should be able to help advise you on filling in the form.

https://advicefinder.turn2us.org.uk/