Congenital Hemiplegia mild

Helens

Hi ,

I have recently requested my summary care plan to make a pip application (Charcot Marie Tooth disease)

I was shocked to discover that I was diagnosed with congenital hemiplegia but at the same time it answered many questions to the weaknesses I have on the left side of my body. Unfortunately during my childhood my mother suffered serious mental health. I was under a consultant at the orthopaedic during the first 10 years of my life but it wasn’t explained to me in detail . all I knew was that my left leg was slightly shorter than my right.
I feel confused and would like to speak to somebody but I don’t know who I should be referred to.

Thanks

SaraC_Scope

@Helens

Welcome to the online community and sharing your story.

I'm Sara one of the Cerebral Palsy specialists in the CP Network here at Scope. I have right sided hemiplegia. My two colleagues and I all have lived experience of cerebral palsy, so if you would like to talk things through about how you're feeling, please reach out.

This is a link to our page on the Scope website. Cerebral Palsy (CP) Network | Disability charity Scope UK There is a wonderful Facebook group called

Cerebral Palsy Adult Advice UK | Facebook

It can be overwhelming to receive a diagnosis of CP in later life. Take time to process this news and we're here if you need support.

Mary_Scope

Just popping by to say a warm welcome to the community from me @Helens!

It's lovely to have you here and I hope you enjoy your time on the community 😊

Helens

Thankyou