How would I get Mum some extra help with my 77 year old Dad with Dementia?

SheffieldMan1976
SheffieldMan1976 Posts: 3,581 Connected
in Families and carers

Above.

She'll not thank me for posting this but she says she's struggling to look after him as he's getting worse with his Dementia.

Would there be a way to get them any help?

Comments

  • SheffieldMan1976
    SheffieldMan1976 Posts: 3,581 Connected

    Can anyone help? I'm loath to ring social services because they don't understand me.

    I am also aware of Google.

  • Rachel_Scope
    Rachel_Scope Posts: 4,464 Online Community Team

    Have you looked at Dementia UK? They have links to different support services and there's an online community that your mum might like to join to connect with other carers. There's also respite care so your mum can have a break.

    Has she said what kind of support she needs?

  • Bluebell21
    Bluebell21 Community Member Posts: 5,419 Championing

    Hi @SheffieldMan1976 have you parents ever had a needs assessment.

    https://www.gov.uk/apply-needs-assessment-social-services

    They will do an assessment to see what help could be available for your parents.

    I hope they are able to help.

    Take care.

  • SaraC_Scope
    SaraC_Scope CP Network, Scope Posts: 453 Pioneering

    Dementia UK have Admiral Nurses who your mum could speak to for some practical and emotional support. Our family have contacted them as my Mum has dementia. They can signpost you to available services.

    How we can support you - Dementia UK

  • SheffieldMan1976
    SheffieldMan1976 Posts: 3,581 Connected
    https://forum.scope.org.uk/discussion/comment/1138793#Comment_1138793

    @SaraC_Scope Thanks, and as much as I'd be willing to get Mum some help from qualified carers, my late Nan (Mum's Mother) used to have them just before she died (which will be 10 years in September), and I've had my own experience of Agency carers being hopeless most of the time because they do not get paid enough to do beyond the bare minimum.

  • SaraC_Scope
    SaraC_Scope CP Network, Scope Posts: 453 Pioneering

    @SheffieldMan1976 Admiral Nurses aren't carers. They are part of Dementia UK and there to provide emotional and practical support over a telephone call or Teams/Zoom meeting.

    It's basically a space to talk about how Dementia is impacting you and accessing information you otherwise might not have known.

  • Anhedonia2
    Anhedonia2 Community Member Posts: 282 Empowering

    Dementia is an awful disease @SheffieldMan1976, I'm sorry your family are going through this. I hope your mum is able to get some help if she wants it.

  • Kiki23
    Kiki23 Community Member Posts: 327 Empowering
    edited July 14
    https://forum.scope.org.uk/discussion/147772/how-would-i-get-mum-some-extra-help-with-my-77-year-old-dad-with-dementia

    Have you looked into CHC for support with your dad??? First thing to do is to get his GP or social worker to do the initial checklist

    https://www.nhs.uk/social-care-and-support/money-work-and-benefits/nhs-continuing-healthcare/
  • Hopeless
    Hopeless Community Member, Scope Member Posts: 1,038 Pioneering

    We had similar problems with my dad. It’s really difficult as if dad says he wants to stay at home social services will just say he can make his own decisions and expect your mum to cope or organise their own carers. From my own experience and from other friends experience you have to basically withdraw care to force the issue. AgeUK gave us some great advice over the phone

  • SheffieldMan1976
    SheffieldMan1976 Posts: 3,581 Connected

    Unfortunately, Dementia runs on both sides of the family, My Nan (Mum's mother) had it (she died in September 2016 aged 97), Dad has it and his twin Sister, Auntie Irene, now lives in a Hospice in Lincoln because she can no longer look after herself due to her Dementia.

    I'm just worried about my Parents, but I daren't bring up the issue or even mention this post because it'd cause a massive argument.

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