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AFO Braces Nipping

Why do they make the standard AFO brace Too high on the leg? They are OK while child is walking But When child sits on the floor they nip. When child rides her Trike they nip. Has anyone else found this? I carn't be the Only 1. Why carn't they have a softer top on them?
Replies
Have you heard of a SAFO? http://www.dorset-ortho.com/product-safo.php
Somthing that one of my physio's wanted to try me in but never did get the chance.
My Loacl consultat wanted to do far more extensive surgery on me then the consultents at GOSH. Some of my friends under the loacl consultant were not as successfull with their op's. Something that I remember Dr Fixen saying is he didn't want to play all his cards at once but to do things in stages. I'm sure Samantha will do great, remaining active and determined are the two very importent keys.
I read an article sometime back about a young person with CP who was a very dertimined swimmer and practually overcame the symtons of CP through swimming. if I find it will post it on here.
http://www.cerebralpalsy.org/treatment-and-therapy-news/swimming-as-cure-for-cerebral-palsy/
Amazing story - very tragic end tho.
Don't give up , keep going it will be the making of you :-)
Recently I was in london discusing aditional surgery, to try and further correct the feet/knee deformities and improve my gait. Although in consultation it has been decided that, yes they might be able to straighten the feet but they can't change the brain. Since that appointment I have been working very hard on my physio and movement theropy which has been helping my balance/hand eye coordination tremedalously.
Yes I can walk, I realy very heaviely on my orthotic boots and using two sticks helps take some wieght off my joints while giving me balance and also helps keep me more upright. Yes - probably should use my wheel chair more just to reserve my energies and look after my body, but very reluctent.
Sam sound amazing, keep encouraging her with the swimming, she will go far. Just an idea to help with the brain connections further, when she is swimming what about listening to music, some types of music are supposed to help stimulate brain connections, I leave you to google that one!
Appricate decsions are hard for you both - all best on the 22nd
Plus with my own body, without the lumpy bits on the side of my feet, they may look un attractive, which I guess is more of an issue for a female, but without them it is likley that I wuld not be able to walk at all. I feel it is like my feet have grown extra bits to help obsorbe my body wieght that i wear more to the outside.
It is excellenet that you have had the botox treatment first, as this does give surgens a much better idea as to how the body may respond to a more permant precurure. I have had botox on my eye muscels which are also effected because of my CP and this has proved to be very effective, and have provevided the professionalls with extra information. Botox can help repositioning without as many risks as surgey and gives everyone an idea on how the brain responeds.