THINKING ABOUT ME AND MY MOVEMENT DISORDER
Options

dystonic
Online Community Member Posts: 3 Listener
Hello.
Probably you or any immediate family suffer from a movement disorder (eg. any sort of dystonia, Parkinson's, Essential tremor, Muscular dystrophy, etc..) or any of its associated symptoms. I suffer from generalized dystonia since the 70’s and I would like to share and think with you about some aspects from my own experience, some negative and others positive.
Among the negatives (let’s call them 'to get improved') I have considered the following:
1. My own symptoms: pain, lack of dexterity, spasticity, gait problems…
2. My dependence on others ,
3. Being socially more inhibited, and
4. Missed opportunities.
In the positive area:
1. Despite the symptoms I have maintained a good mood,
2. Such an ability to select the best people, places, etc.,
3. Further development of certain individual skills, and
4. The teachings of own suffering.
The key, from my point of view, becomes our first objective, and it is called: self-acceptance.
To go into each of the above aspects in depth with me, please visit the video area in distoweb: www.distoweb.com.
Hugs,
Fernando.
Probably you or any immediate family suffer from a movement disorder (eg. any sort of dystonia, Parkinson's, Essential tremor, Muscular dystrophy, etc..) or any of its associated symptoms. I suffer from generalized dystonia since the 70’s and I would like to share and think with you about some aspects from my own experience, some negative and others positive.
Among the negatives (let’s call them 'to get improved') I have considered the following:
1. My own symptoms: pain, lack of dexterity, spasticity, gait problems…
2. My dependence on others ,
3. Being socially more inhibited, and
4. Missed opportunities.
In the positive area:
1. Despite the symptoms I have maintained a good mood,
2. Such an ability to select the best people, places, etc.,
3. Further development of certain individual skills, and
4. The teachings of own suffering.
The key, from my point of view, becomes our first objective, and it is called: self-acceptance.
To go into each of the above aspects in depth with me, please visit the video area in distoweb: www.distoweb.com.
Hugs,
Fernando.
0
Categories
- All Categories
- 15.3K Start here and say hello!
- 7.2K Coffee lounge
- 87 Games den
- 1.7K People power
- 117 Announcements and information
- 24.2K Talk about life
- 5.8K Everyday life
- 413 Current affairs
- 2.4K Families and carers
- 868 Education and skills
- 1.9K Work
- 525 Money and bills
- 3.6K Housing and independent living
- 1K Transport and travel
- 884 Relationships
- 256 Sex and intimacy
- 1.5K Mental health and wellbeing
- 2.4K Talk about your impairment
- 863 Rare, invisible, and undiagnosed conditions
- 923 Neurological impairments and pain
- 2.1K Cerebral Palsy Network
- 1.2K Autism and neurodiversity
- 39.5K Talk about your benefits
- 6K Employment and Support Allowance (ESA)
- 19.6K PIP, DLA, ADP and AA
- 8.2K Universal Credit (UC)
- 5.7K Benefits and income