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Using Bipap and struggling

kingyclankingyclan Member Posts: 17
edited June 2014 in Parents and carers
My 15yr old son has recently had a sleep study and is now having to use Bipap. He has quad dystonic CP and lots of other extras and we are struggling to introduce the mask. I've tried it myself and think he is a star to manage any time on the machine. Can anyone help with tips on how to introduce the mask with least distress, when to put it on - anything that might get us through this! He is fighting hard each night, biting the inside of his lips, knocking the mask around, knocking us around - can't say I blame him but this is all pretty intolerable for him and us when it is happening at 11 / 12 at night when we all just want to sleep.

FYI the machine is ramped and he has a full face mask.

Any advice appreciated!
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Replies

  • AlexAlex Posts: 1,325 Scope community team
    Hi,

    One of our twitter followers, Imogen, has tweeted this:

    "I suggest she contact's Tia through her blog: http://tinyurl.com/68bmbxn her kid's use it & she's been though millions of masks!"

    I hope that's helpful,

    Alex
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  • kingyclankingyclan Member Posts: 17
    Thanks for that. He's done well tonight. Just taken the mask off - it was pulsating against his face and disturbing his sleep - can't work out why at the mo but he's managed 4hrs tonight. Now snoring for England again and that's disturbing him too.
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