If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Hi there my name is steph and i have a 8 month old called jack. Basically had jak a couple weeks early after a bad bleed during pregnancy. Jack was born on the 9th of jan and he seemed fine, sucked well just had mild jaundice. We went home after 5 days. Jack seemed to be progressing and then all of a sudden jack stopped feeding and screamed everytime a botltle went near him. Ended up getting a uti and the docs thought he had refux and was put on lots of meds for that. To cut a long story short they are now investigating quad cp, along with genetic things etc. They dont wanna diagnose Jack yet as he is so young, all we know he is stiff in all 4 limbs. Just wondering if anyone has been or going through this. Also on the posptive side jack smiles, giggles, babbles has excellent head control and eats solids, my concern is he doesnt play with toys. Does anyone know anything about this and if its common for babies with cp not to reach out yet and is there hope. Some days i can cope and live for the now other days i worry myself sick about Jacks future. I am so happy to have him but just so worried too. I hope to hear from someone soon