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Jejunostomy after 11 years of feeding orally..
My eleven year old daughter has just recovered from a very serious and terrifying bout of pneumonia. After 11 years of general good health, considering the degree of her CP. She is now considered to have an unsafe swallow and a peg was suggested as a solution. Unfortunately an attempt to insert a gastostomy failed in theatre as she has a scholiosis which impeded access to her stomach wall as her ribs were in the way. A jejunostomy appears to be the only alternative as she is being currently fed nasogastrically which obviously is not a long tern option. I have no real information on the day to day management of a jejunostomy so would appreciate any information anyone might have, Thanks.