Parents and carers
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Tell us your good news!

EmmaEmma Member Posts: 88 Connected
edited June 2014 in Parents and carers
We want to hear your happy stories! Tell us about your proud moments and your latest breakthroughs. Has he just learned to run his own bath? Is she walking now? What better place to celebrate than here - amongst people who understand the hard work that's gone into your success!

Replies

  • HeatherHeather Member Posts: 188 Listener
    Our son is the only pupil at his special needs school with no speech. Any class, or school assemblies would involve our son holding up a picture, or being dressed as a tree, or cloud! Last term the children stood up to show parents their art work and to give a small description as to what it was relating to their holiday experiences. Our son held up his "picture", not a clue what it was, but then he shouted out "ding ding" meaning bus. All parents present were so chuffed to hear his first words and watch us mop the tears away. A memory we will never forget. Our son is 9 years old we waited along time for that moment.
  • StevePikeStevePike Member Posts: 2
    Three cheers for ding ding ! Thank you Netbuddy for making this space. My 16 year old son has been in a wheel chair for the last two years. Over the last 6 months he las lost quite a lot of weight (he needed to lose weight, something which is very hard to do when you have LD and can't walk). He has begun to weight bear again so now he can transition more easily and can even sort of stand up next to me for a short while. I can't describe the surge of emotion and how it feels to have my son stand next to me.
  • Bigsis2Bigsis2 Member Posts: 2
    My brother Ben is 54 and has Down's syndrome. He's always had a brilliant sense of humour, and when he was younger he loved to be the centre of attention, but over the last few years, he's become very withdrawn. He goes to a day centre and has stopped doing a lot of the activities there. Recently they suggested to my parents that Ben might have early onset Alzheimers. When my parents told me, I was naturally very upset. Ben picked up on my mood and, with a twinkle in his eye, he nudged me and said, "Parents eh?" It was lovely to see his old sense of humour back - and it couldn't have been better timed!
  • JimJamsJimJams Member Posts: 175 Listener
    edited June 2014
    Thanks to some of the advice from net buddy users, I have been able to apply some more useful strategies when coping with my sons autism, I have tried extending his foods and he is now eating raisins happily and not so many crisps or unhealthy snacks and his weight is going down a bit. Introducing subtle changes seems to be the way forward. Thanks net buddy
  • NaomiNaomi Member Posts: 29 Listener
    My goddaughter has severe cerebral palsy and has always refused to tolerate gloves, which in the cold weather obviously limits the amount of time she can spend outdoors in her wheelchair. After years of massage and brushing her hands - the back and front of the hand, between her fingers, from the elbow down, and with many different types of brushes - she is finally tolerating gloves. We find the best type of gloves comes from Accessorize as they are loose around the wrist and so go on more easily. They are fingerless with a type of tea cosy which fits over the top of the fingers. We then use bands around her wrists to keep her gloves in place. This makes outdoor activities so much more enjoyable!
  • TeresaTeresa Member Posts: 24
    My seven year old daughter has limited functional speech and has not shown much interest in talking to friends or relatives on the phone. I was amazed the other day when the phone rang and she told me to 'answer phone' and then asked 'who is it?'. It might not sound like much, but I was so thrilled!
  • JimJamsJimJams Member Posts: 175 Listener
    It is so heartwarming to read all these fantastic good news stories, our children are amazing!!
  • AuKidsAuKids Member Posts: 1
    Don't assume that a child who has not learned to use sign language can never learn it. I tried with my son when he was five with no luck. Then when his motor skills improved, I tried again and was amazed at how responsive he'd suddenly become. So never right off a technique, it could be a case of right technique, wrong time!
  • JimJamsJimJams Member Posts: 175 Listener
    My son who constantly strips off, asked for pyjamas out of the blue last week, he will now change out of his school clothes into pyjamas now. I have only been trying to get him to do this for 3 years. Hopefully this will last but I suspect it is because the weather is turning, fingers crossed.
  • Clare35Clare35 Member Posts: 9
    Hi everyone my son is 8 years old and started walking last year. recently he has been swinging his legs round to get out of the car instead of us trying to lift him out we certainly get some proud moments with him.
  • TeresaTeresa Member Posts: 24
    It was my daughter's birthday last week and, for the first time, she showed real awareness that it was a special day for her. It was so nice for us to be able to really feel that we were sharing the occasion with her, even though she woke up at the crack of dawn demanding PRESENTS!
  • JimJamsJimJams Member Posts: 175 Listener
    My boy is showering and tolerating water on his head, not quite got round to the shampoo yet, but water on his head is a start. He was terrified of the shower for some reason and did not even like rain on his head, but now he is showering and singing away in the shower
  • JimJamsJimJams Member Posts: 175 Listener
    Hi everyone hope you are all having a relaxing time over xmas hols. We had a good day out yesterday at the zoo, give or take a few roughed up penguins. My son had a good day yesterday, and showed a bit of interest in the animals. Have a good new year everyone
  • HeatherHeather Member Posts: 188 Listener
    I know what you mean. We are having to convert our house to accommodate our son downstairs as he can't access the bathroom upstairs. But we only have space for bedroom and wetroom, so trying to teach our son to tolerate the shower. He plays fireman with the shower head which is great in a wetroom....not so good wiping down the bathroom walls though! But he is happy to play, just comes out as dirty as he went in though!
  • MixxiMixxi Member Posts: 32
    This is a slightly older happy story. Last summer, when we to visit the grandparents who live by the sea, my boy showed some increased interest in the little coin operated electric cars.
    After a few days and many, many coins - not to mention all the breaking down of tasks - pedals, steering and running around the track adjusting the car - he finally steered and drove around the track by himself.
    Even better, my parents were there to see it - I could have burst with pride..until my Dad said "so what, he's a smart lad - he'll work it out"
    (My folks can't really accept my boy's disability yet)
    Still - it was an amazing moment for me, my boy...and my husband when I told him later on the phone.
  • JimJamsJimJams Member Posts: 175 Listener
    Amazing story, I can feel your pride, I wish I could have seen it, I had a similar experience this year when my son went a pedal bike on his own, his motor skills have improved enough to pedal and steer at the same time, did not stop me running behind him everywhere like a looney, but he found this funny.
  • HeatherHeather Member Posts: 188 Listener
    We all run round like they're about to fall into a million pieces....don't we look sillly!!!???!!!. But a friend was telling me of when her parents took her autistic son off to the lakes. Their normal dog walking area. But the grandson had a routine, climb a tree, go to the supermarket and home. Grandparents lost sight of him at the lake, so headed for "his" tree. No sight of him. Asked everyone in sight. Someone remarked a boy of that discription had ran over to the supermarket some 10 minutes ago. So off go the "oldies" Gran having just had a hip replacement. Asked in store and they kindly viewed the CCTV. Yes he had entered the store, 5 minutes later seen leaving the store! Panic, police phoned and grandparents decided to head back to the lakes...this had taken an hour!..but enroute, there was the lad in the middle of a duel carriageway munching the biscuits and cakes he had just walked out the supermarket with, walking home. He's 12 with a mental age of 3 years...he knew what he wanted and was totally unaware of any upset! Gran and grandad were alittle more grey after that episode! But he had actually gone into the supermarket, found the gluten free biscuits and was preparing to walk the 10 miles home! How astonishing is that? you'll all recognise him...he's on the Britain's most wanted shop lifters list!
  • JimJamsJimJams Member Posts: 175 Listener
    My son has learned to swim over the summer holidays, he has been having lessons for a year and just the other week started swimming on his own with no floats under water, he is like a wee dolphin now, no stopping him, I am so proud, another achievement for my boy affected by autism
  • JimJamsJimJams Member Posts: 175 Listener
    Heather just saw your story above re the wee boy and his grandparents. what a shame they must have been worried sick, at least they caught up with him and all was well in the end. I believe they will have more grey hair, mines has turned white in the past two years, and I look 20 years older than I am, but its all worth it in the end
  • MixxiMixxi Member Posts: 32
    Hi Marie - loved your story about the swimming. (I always enjoy your posts) Well done to the dolphin boy! We are a long way off that yet but at least my lad likes going in the pool now - so I am hopeful.
    We had a wonderful summer - my boy went to my works playscheme (with support) and he absolutley loved it. He was so happy that it made me realise how miserable he must have been in his last year at school. I'm determined to make his school life much happier and more stimulating this year. Disappointing that a special school always assumes that the pupils are stupid. I know he's got alot of problems but there is a lively little mind in there - if only he'd tell us about it.
  • NaomiNaomi Member Posts: 29 Listener
    Another swimming story! After thirteen years of encouraging our son Jack to get in the water and then, after many years, to let go of the side of the pool, he is finally swimming independently. He has a style of swimming which is all his own, sometimes doggie paddle, sometimes breast stroke, often neither leg kicking very much at all, but he stays afloat. Best of all he loves it, and the water gives him alot of physical freedom. We are very proud of him.
  • JimJamsJimJams Member Posts: 175 Listener
    My boy is now swimming alos on his own and under water, however he does swim like a dolphin, hands at his side and kicking , a bit like a diver also, but he is swimming without any floats which is great. I also spoke to a brain injury specialist, (i know autism is not an injury), but she had said that improving his coordination i.e swimming has a link to improving other areas in the brain she said it is a small link but improved coordination opens up other channels in the brain. Just need to try and get him to stop bombing into the pool and soaking everyone.
  • JimJamsJimJams Member Posts: 175 Listener
    Meant to say well done to jack, what a wonderful milestone in his life, keep on swimming whatever style you like, wish I could see the smile on his face
  • JimJamsJimJams Member Posts: 175 Listener
    I have been trying to deal with my sons overeating for a long time and have tried hiding food, having only a limited amount of food in the fridge/cupboards and have charts and symbols and all sorts going on, my son one night so desperate to eat right in front of my eyes took eggs , cheese, milk, grater out and made himself scrambled egg,microwaved it and everything. I kept telling him eating was finished and he just said, i will make it and off he went. He is only 6 and can make himself a dish, it just shows you where there is a will there is a way.
  • AlistairAlistair Member Posts: 120
    That's a good story! I love to see children getting independant. My 13 year old daughter can make toast and is so proud of herself.
    However my 'happy story' is this:
    She hates shopping and really, really hates shoe shops but I needed to get her new shoes. I'd prepared her for this but it took an hour to get her in the car. On the way she said 'I don't want a man to measure my feet, I hate men'. When we got in the shop it was busy and I could not see a single woman in the childrens section. I found the manager and explained the situation. He found a woman (It was Clarkes, so you should expect good customer service!) and we left with a pair of trainers reduced from £30 to £9, Result!
  • lorraineTlorraineT Member Posts: 3
    My daghter is 15 and has autism. She spent two years in nursery then went into rece
    ption class a year behind her peers. Due to her severe difficulties at the time and lack of progress Amy got a place in a speech and language arc with a full time speech therapist. When Amy was 8 years old we were told that Amy would never achieve in school get GCSE etc but we believed that Amy could achieve and her understand was better than professionals were saying. Amy made some progress and went into secondary mainstream which at the beginning was a challenge but staff in school were very supportive and we managed after a bit of a battle to get education transport for our daughter to mainstream. Amy has statement of special educational needs. Now Amy took exams last year and passed all her GCSES that she was put in for. Amy is taking exams again this year with BTECS and is predicted at getting at least 8 GCSE marks. Maths is not good and is only entry level 1 and dycalculia is suspected. From our daughter going from a child with no speech and language to being able to do a level 3 course in 6th form is fabulous and we are so proud of her achievements. I guess my message is never give up hope. My daughter is moderate/severe autism and does have a lot difficulties but by building on her strenghts we have helped her gain more confidence and self esteem to help her believe she can achieve x
  • lozangel38lozangel38 Member Posts: 2
    This is a happiness story.. I was diagnosed with dyspraxia at the age of 12, at secondary school I was told by teachers and pupils that I was thick and a failure and that I wont be able to do anything in my life apart from go on the doul.

    4 years on from that I got 9 GCSES ok yea they weren't a* but one was a C and the rest d so all qualified and also did gnvq advanced in business studies.
     
    8 years on I'm still proving people wrong.. I went to college and did child CARE AND passes and qualified teaching assistant. I work in special needs school  in a been a  support worker and councillor and got sign language to level 2; 
    I have nearly done to my English.

    Just wanted my story to let everyone with dyspraxia or any other disabilities that you can do if you really try and you can achieve anything. I love my life now and love proving people wrong x
  • Natasha BrownNatasha Brown Member Posts: 112 Courageous
    my autistic SLD son completed the london mile for sport relief last week! we were me, two daughters, son and his carer - in case he couldnt cope with crowds or waiting but he did fab and was fantastic! then we went to trafalgar square and he independently climbed on lions (usually needs encouragement) :) and we reached our target too :))))
    I've put the photo up on our page.
    http://my.sportrelief.com/sponsor/georgialeilaiulenlaco
  • NaomiNaomi Member Posts: 29 Listener
    We all have our own particular worries about our children and mine has always been teeth. My son is fourteen years old, non verbal, and with epilepsy and behavioural problems. There is no way he would ever tolerate dental work, even persuading him to sit on the dentists chair can be a struggle. But after months of patience, including three weeks just showing my son a dental floss pick, and another two weeks of persuading him not to bite my fingers when I put them near his mouth, my son is letting me floss between each tooth. In fact when we went last week for a check up with the hospital dentist she was amazed to see me floss his teeth. She said she had never seen such clean teeth on any child let alone a special needs child!
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