Lycra Splints for people with cerebral palsy - Page 3 — Scope | Disability forum
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Lycra Splints for people with cerebral palsy

13

Comments

  • Georgie
    Georgie Community member Posts: 31 Connected
    That's a great idea. I will definitely ask them to refer me to a specialist consultant.

    Thank you again for all your help. With this information, I shouldn't have as many problems as other people have because I know what to ask for.

    Thank you again.

    Georgie
  • Stayce
    Stayce Community member, CP Network Posts: 843 Pioneering
    edited November 2015
    Hi Noah - The construction of your carbon fibre AFO sounds amazing. They are using CADCAM tech. Hope you have the opportunity to see some of the production as the 3D modelling software is very impressive. Carbon fibre AFOs may not be the solution for everyone as you say, but I like to think striving for developments like this, as you are, will push the whole orthotic industry. I will be interested in your progress with this, keep us updated

    Hi Georgie - Noah is right sometimes consultants can cut through some of the "red tape" that GPs can't. Perhaps also ask the Young Adult Service where the majority of their 25+ patients get referred to ( they must collect some transition service statistics) Do let us know how you get on. Best of luck

    Thanks to both of you for a most interesting discussion

    Best wishes

    Stayce
  • Noah
    Noah Community member Posts: 425 Pioneering
    edited November 2015
    I was very impressed with the 3D modeling software that Mark at Crispin Orthotics used, while I was visiting. He was able to adjust the angle of my feet on the computer and it automatically adjusted all the different volume measurements. I understand the scanner and software combined, cost in the region of £40k!

    CAD/CAM should create a product that is right first time, without the chance of a plaster mould changing shape etc!!

    I have lost count of the number of times I have got all excited about an AFO fitting, waited ages for an appointment, taken time off work, to then get there, to find that something had gone wrong with the manufacturing process and it doesn't fit!

    Hopefully in the future all NHS orthotic departments will have access to the latest technology, to allow them to be far more efficient and get the design and manufacturing right, first time, thus reducing the number of visits that a patient needs to make.

    Noah

  • Georgie
    Georgie Community member Posts: 31 Connected
    Thank you Stayce and Noah for your comments. I will definitely see what the Young Adult Team say in regards to my next options when I see them in February.

    Thank you again to you both

    Georgie
  • Noah
    Noah Community member Posts: 425 Pioneering
    Today is the day of my appointment at the RNOH. I'm very excited about it, got everything prepared - and I have read up as much as I could about JAB, he sounds like an incredible person.

    Thanks again for all your help guys, the detail you provided was excellent. I now know what colour to request if lycra splints are decided the right solution me!

    Kind regards


    Noah
  • Stayce
    Stayce Community member, CP Network Posts: 843 Pioneering
    Hi Noah
    Wishing you the best of luck for today's appointment, hope it all goes well for you. Let us know how you get on. Stayce
  • Georgie
    Georgie Community member Posts: 31 Connected
    Hi Noah

    I hope your appointment goes well. I have blue lycra splints, and they work great for me. If you are able to have lycra splints it might be worth asking what colours they provide, and if a particular colour is better in the summer

    Georgie
  • Noah
    Noah Community member Posts: 425 Pioneering
    edited December 2015
    Thank you - it was a very successful consultation. We are going to try some bespoke insoles along with lycra splints, and I have requested beige colour to try and keep my legs cool! :-)

    Thanks again for all your help and support guys, if it wasn't for this scope community discussion I wouldn't have known about lycra splints.


    Noah
  • Stayce
    Stayce Community member, CP Network Posts: 843 Pioneering
    Hi Noah - That's great. It sounds like you had a good experience. I have the same combination bespoke neuro insoles and lycra splints and they work really well for me. I will be interested to hear your thoughts on the lycra splints, I went on about how great they felt for weeks :) When will you get your new orthotics? Best wishes Stayce
  • Georgie
    Georgie Community member Posts: 31 Connected
    I'm glad the consultion went well and that you're getting lycra splints. I hope they work really well for you. When do you get them?

    Georgie
  • Noah
    Noah Community member Posts: 425 Pioneering
    Not until the first week of Feb. Maybe an earlier cancellation appointment will become available. I was very impressed with the orthotic department at the RNOH, first class.
  • Stayce
    Stayce Community member, CP Network Posts: 843 Pioneering
    That's good, I'm glad you were impressed. Let us know how you get on. Best wishes Stayce
  • Georgie
    Georgie Community member Posts: 31 Connected
    Hopefully an earlier appointment will become available. It would be great to hear how you get on with your lycra splints
  • Noah
    Noah Community member Posts: 425 Pioneering
    Thanks again - will keep you posted. JAB was interested to hear your thoughts on how beige colour seems to keep legs cooler.

    You may of have already covered this, so apologies in advance, but JAB suggested that wearing them without soaks was most effective. Does that mean the lycra splints will need washing every night? I already struggle to keep athlete's foot at bay due to the plastic afo's getting very hot, and I take cleaning my feet very seriously as a preventive measure. Including drying them everyday with a hair dryer!
  • Stayce
    Stayce Community member, CP Network Posts: 843 Pioneering
    edited December 2015
    I have had numerous colours beige, black and blue and red combination lycra splints. I have found the beige to be cooler in summer months. The dye process for the darker/ richer colour garments makes them a bit more dense /thicker fabric.

    I wear my lycra splint without socks, but I have a soft toe portion added so it is a complete sock (most lycra socks will normally end at metatarsal heads) This is something I suggested to Georgie to further reduce heat and eliminate extra bulk of another Sock over the top. Don't worry if you think this is something that you might want - they can easily get this added after you have tested it.

    The lycra splints are machine washable. I get away with washing them every two days. They dry pretty quickly, if leave them in airing cupboard over night they would be ready next morning.

    Hope this helps, any further questions just drop me a line. Happy to help

    Best wishes

    Stayce
  • Georgie
    Georgie Community member Posts: 31 Connected
    I've never worn beige lycra splints before, and I do have to wear a sock over my splints. I'm going to see if the Young Adult Team can get me beige lycra splints and ones where I don't have to wear a sock over them. Good luck with your splints when you get them. If you have anymore questions I'll do my best to answer them

    Georgie
  • samantha106
    samantha106 Community member Posts: 3 Listener
    hello I had splints and cast they never charged me
  • Stayce
    Stayce Community member, CP Network Posts: 843 Pioneering
    Hi Samantha - welcome to the community. I hope you enjoy meeting people here. We are a friendly bunch :) As you will see from the rest of this discussion on lycra splints. These are a different type of splint that are available on the market which don't involve casting, instead they require intricate measurements and sometimes it is not always possible for everyone to get these on the NHS and go private, if they are able to. Hope this helps and welcome

    Best wishes
  • Noah
    Noah Community member Posts: 425 Pioneering
    Thanks so much for all your help guys, I will probably have a few more questions when I finally get the lycra splints in Feb. Although JAB very kindly suggested that he maybe able to post the lycra splints to me earlier to try! I've got to buy some new shoes my actual size, 8 instead of 10 before my appointment. Great timing being January sales :-)

    Welcome Samantha106 to the Scope community. What type of splints do you wear? Feel free to ask any questions and we will do our best.

    Enjoy the holiday season

    Noah
  • Georgie
    Georgie Community member Posts: 31 Connected
    That's great Noah. At least you can take advantage of the January sales.

    Welcome Samantha. If you have any questions, I'll do my best to answer them, as I'm sure the others on this forum will too. I hope you enjoy Christmas and New Year.

    Georgie

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