Hi, my name is Clairesian! — Scope | Disability forum
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Hi, my name is Clairesian!

Single mum with 7 year old daughter diagnosed with lissencephaly- seizures, global delay, partially sighted

Comments

  • abstractLucas
    abstractLucas Member Posts: 76 Connected
    Hi Claire, welcome to the Scope community. Sounds like you're dealing with a lot at the moment, how are you doing? Do you have any support from extended family or your daughters dad at all?
    Lucas
  • Clairesian
    Clairesian Member Posts: 3
    Thanks Lucas,
    Yes I'm very lucky, I have my mum close by and her dad has her every other weekend. I've always struggled to find respite/childcare for her, especially during the school holidays when I worked, so much so, I changed to term time only, she isn't especially difficult to care for (mobile, some language, friendly happy girl) it's the small community in which we live in I think,
  • abstractLucas
    abstractLucas Member Posts: 76 Connected
    Childcare for children with additional needs is a bit of a nightmare, but sounds like you're doing really well. Have you had a carers assessment from your local council? Particularly as you're juggling being a single parent as well as working, you need to make sure you get a proper break for yourself sometimes! Might be worth a phonecall to see what they say. My son is mostly friendly and happy too - makes life so much easier as he's nice to have around, you know? Anyway, sure to cross paths again soon, you'll find all sorts of bits of useful info around here!
    Lucas

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