Hi mine sheena my little boy been diagnosed with autism he a lovely little lad well in say little he's as tall has me naI struggle with wen he's on one he runs off which is scarred me if he runs into road I don't want image what wud happen xx
It's brilliant to hear that the community is a support to you @Yiman60
@julia35 I believe your son was also diagnosed with PDA, do you have any information that could support @Yiman60 ?Yiman, I am sorry you are having such a tough time, you sound really frustrated. It sounds like a very difficult time for you. Have you seen the PDA Society?PDA was also discussed on BBC radio 4 recently, you can listen again here.
It is essential that PDA is recognised to ensure that children, teenagers and adults with the condition get the support and understanding that they need. Without this support the mental health of individuals with PDA is at severe risk. PDA also has significant impact on families and is causing family break down and crisis. It is essential that the condition is not only recognised but that a wiser understanding of the condition is spread throughout educational and care settings too.
Laura Kerbey BSC(Hons) PGCE PGCSE NPQH
18:33 on 29 Nov 2016
Just one of the comments.
Would Scope support our Petition? Will you listen to World Experts ? Will you listen to parents and adults desperate for answers, help and support?
We all know prevention is better than cure. The state of mental help services is shocking. There is no available Children's mental health beds past Dundee. They now have a Mental Heath Minister but no real funding. It's just talk , talk, talk.
Waiting times are appaling . What are you suppose to do in the mean time. The Police are now the Emergency Mental Health Service.
Governments blame Council,, Councils blame Governments.
The situation is deteriorating by the day by cut backs.
Exactly the same answer as I received from the SNP Government . Does not listen to thousands of parents, teachers, even CAMHS complaining about the increase in children with mental health issues because of cut backs to support in schools. One teacher has 9 additional support children including a blind child, went home and cried because he could not support the children in his class.
Exactly the same answer as I received. Go to Enquire or Govan Law Centre. Fob these families off . Don't face the shocking truth and reality of the situation.
evening all as you may be aware my son is diagnosed with ASD Aspergers and PDA looking at earlier post about son runing off i also had this with my son before trip we have decided that we say a stop what we are doin word ours was cupcake if i or my son said cupcake this didnt attract attention with usual screamin throwing ourselves on floor or worse running away we make plan before we go out as i myself dont have support also and its difficult i try to move as many battles as possible to avoid as much PDA meltdowns as mums of these kids its nice to share experiences and help each other there is lot of mums on PDA facebook page your not alone theres other people with same fears as we understand each other
Pathological Demand Avoidance (PDA) is now widely recognised as a distinct profile of autism. Individuals with a PDA profile will share similar difficulties to others on the autism spectrum in the following areas: