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Looking for information on SDR operation for cerebral palsy

jake2008
jake2008 Member Posts: 6 Listener
edited October 2016 in Cerebral palsy
hi I looking to have sdr operation at Nottingham for my son is there anyone who has this op at this hospital and able to give me any further info plz I would be very grateful thank you 
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Comments

  • EvanJosMam
    EvanJosMam Member Posts: 1 Listener
    My 5 year old son is 3 weeks post sdr op only it was done at Bristol if you would like to ask anything go ahead id be happy to help 
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  • jake2008
    jake2008 Member Posts: 6 Listener
    Hi thanks was it a good decision and how Mobile is your son because my son needs wheelchair and can't walk at all thanks
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  • eliseland
    eliseland Member Posts: 2 Listener
    Greetings from Norway,
    currently me and my partner/girlfriend is fundraising for her to have SDR surgery at Nottingham University Hospital. About 1 month ago we travelled over to Nottingham, to meet with the neurosurgeon. 

    In Norway they don't do this type of surgery and we won't be funded by the state for getting the surgery, which costs 17000 British pounds.

    These days we are going out in the norwegian media, in hope that people want to help fund for Siljes surgery.

    Silje is 28 years old and lives with the condition Quadriplegic Cerebral Palsy.
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  • albalushi
    albalushi Member Posts: 5 Listener
    EvanJosMam said:
    My 5 year old son is 3 weeks post sdr op only it was done at Bristol if you would like to ask anything go ahead id be happy to help 
    Pls can you share some info about your experience with Bristol hospital team as we are in process to do SDR there sometime beginning of next year. did your child benefits from the operation and is there any comments you id worth to share with us.    
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  • Richard_Scope
    Richard_Scope Posts: 3,106

    Scope community team
    Could you give @albalushi any information about your experiences at Bristol?

    Scope
    Specialist Information Officer and Cerebral Palsy Programme Lead

    'Concerned about another member's safety or wellbeing? Flag your concerns with us.' 

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  • albalushi
    albalushi Member Posts: 5 Listener
    So far nothing I can share except the professionalism way how the SDR team are replying to us and explaining the surgery process, they gave us in details all the requirements and as well how they will perform the surgery and post-surgery as well. The information provided to us was very useful and this gave us some confidence about the treatment team. 
    I advise you to contact them and you can find the contact details in hospital web site.  
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