We are not invisible.
Options

loopysos
Online Community Member Posts: 14 Contributor
Hi
I suffer with chronic illnesses, and know the daily struggles of being disabled. From before you even step out your door, getting ready and having a planned route for the day. I didn't know becoming expert planner was part of being disabled, there isn't script to follow on how to do things, where to go for certain support. Often leaving me completely lost. I am somebody who wants to bring awareness on the many struggles we face, I am no expert, however be a voice for so many who feel the same way. Just because we are ill, doesn't mean we're not part of society.
Loopy (Lucy is my real name).
I suffer with chronic illnesses, and know the daily struggles of being disabled. From before you even step out your door, getting ready and having a planned route for the day. I didn't know becoming expert planner was part of being disabled, there isn't script to follow on how to do things, where to go for certain support. Often leaving me completely lost. I am somebody who wants to bring awareness on the many struggles we face, I am no expert, however be a voice for so many who feel the same way. Just because we are ill, doesn't mean we're not part of society.
Loopy (Lucy is my real name).
1
Comments
-
Hi Lucy,
So good to see you here! I agree with you completely, the planning can be exhausting. When I have a bad day, the thought of packing everything I need for the day, then choosing routes based on where toilets are, taking medication to be able to leave the house at all, etc sometimes just it feels easier to stay in.
I have become an expert on where all the public toilets in my area are!
Look forward to seeing you on the community.
Sam0 -
Hello loopysos0
Categories
- All Categories
- 15.3K Start here and say hello!
- 7.2K Coffee lounge
- 88 Games den
- 1.7K People power
- 121 Announcements and information
- 24.1K Talk about life
- 5.7K Everyday life
- 406 Current affairs
- 2.4K Families and carers
- 864 Education and skills
- 1.9K Work
- 523 Money and bills
- 3.6K Housing and independent living
- 1K Transport and travel
- 884 Relationships
- 256 Sex and intimacy
- 1.5K Mental health and wellbeing
- 2.4K Talk about your impairment
- 863 Rare, invisible, and undiagnosed conditions
- 922 Neurological impairments and pain
- 2.1K Cerebral Palsy Network
- 1.2K Autism and neurodiversity
- 39.3K Talk about your benefits
- 6K Employment and Support Allowance (ESA)
- 19.5K PIP, DLA, ADP and AA
- 8.1K Universal Credit (UC)
- 5.6K Benefits and income