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Misophonia & severe heat intloerance.
Hi, Folks, Fm here. Does anyone here suffer with severe misophonia, also known as 4S syndrome, ( Selective Sound Sensitivity Syndrome ) and/or severe heat intolerance and appalling excessive profuse sweating as a result? For some unknown reason by the looks of it no-one in the UK is bothering to collect any figures on how many such people there are in our nation which I find appalling because given the absolutely dreadful life destroying suffering it can cause it should be a priority surely. I suffer with both the above conditions and a whole lot more and I know how absolutely dreadful it can be so I would like to urge anyone here who is suffering such conditions or knows anyone who is to speak up about it and complain to the authorities. The UK is a democracy and you don't have to be ignored because of the state you're in, you have rights so make sure you use them while you still can, who knows where this country will be in the future? Also in my long, hard and dreadful experience far too many public buildings and transport are wrongly described as "fully disability compliant" or "accessible to everyone" etc. but I know this is not the case in a lot of places so if like me you're sick of being so totally ignored by those responsible for such facilities then don't suffer in silence, speak out publicly, complain! and if they won't listen keep at it or take it further. It's no good just me complaining. It's not anywhere near enough just to have level access and ramps and deaf aid induction loops and powered doors and lifts etc. Far too many public buildings and vehicles are increasingly being designed and run in such a way that actually exacerbates such appalling disabilities as misophonia and severe heat intolerance when it should be the other way round. Take libraries for instance. I used to spend hours in such places but then just as the "access improvements" were being fitted to such buildings at the same time someone somewhere also decided to liberalise appalling noise in libraries and therefore forcing folk like me right out which is a serious breach of disability equality. A place like a library is a place of reading and therefore needs quiet, if people want to go hyper-hysterical they can go to somewhere else like a pub. Raucous hysterics in a library is dreadfully anti-social. And then also far too many public places are fitted with transparent roofing which lets baking hot sun shine right in the summer making them often far too HOT for people suffering the above conditions which once again seriously wrong. A place like that is NOT "accessible to everyone" at all. So don't take it lying down. Complain! I joined this forum to highlight this kind of disability which is far too widely ignored by far too many and far too widely unknown which just won't do. These absolutely appalling conditions urgently need to be properly officially recognised as disabilities and not just ignored it just won't do! Fm.