Hi, my name is May!

May
Online Community Member Posts: 2 Listener
I have my own health issues but they are neither here nor there in comparison to my granddaughter who has been diagnosed with Behçet's disease and TRAPS. My daughter (who is also very ill) is now being tested for the TRAPS gene. We share a home & I am their carer...........
0
Comments
-
Hi May
Welcome to the site, I trust that you will find it a useful resource.
Kind regards0 -
Thank you x1
-
Hi @may How are you all getting on? Did your daughter get tested? We now have a rare conditions group that you might like to take a look at and share your experiences.
0
Categories
- All Categories
- 15.1K Start here and say hello!
- 7.1K Coffee lounge
- 86 Games den
- 1.7K People power
- 116 Announcements and information
- 23.9K Talk about life
- 5.6K Everyday life
- 353 Current affairs
- 2.4K Families and carers
- 863 Education and skills
- 1.9K Work
- 515 Money and bills
- 3.6K Housing and independent living
- 1K Transport and travel
- 876 Relationships
- 254 Sex and intimacy
- 1.5K Mental health and wellbeing
- 2.4K Talk about your impairment
- 859 Rare, invisible, and undiagnosed conditions
- 920 Neurological impairments and pain
- 2.1K Cerebral Palsy Network
- 1.2K Autism and neurodiversity
- 38.9K Talk about your benefits
- 5.9K Employment and Support Allowance (ESA)
- 19.4K PIP, DLA, ADP and AA
- 8K Universal Credit (UC)
- 5.6K Benefits and income