Hi, my name is May!

May
May Online Community Member Posts: 2 Listener
I have my own health issues but they are neither here nor there in comparison to my granddaughter who has been diagnosed with Behçet's disease and TRAPS.  My daughter (who is also very ill) is now being tested for the TRAPS gene.  We share a home & I am their carer...........

Comments

  • MrsLogic
    MrsLogic Online Community Member Posts: 41 Connected
    Hi May

    Welcome to the site, I trust that you will find it a useful resource.  

    Kind regards
  • May
    May Online Community Member Posts: 2 Listener
    Thank you x
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    Hi @may How are you all getting on? Did your daughter get tested?  We now have a rare conditions group that you might like to take a look at and share your experiences.