Hi, my name is May!

May

I have my own health issues but they are neither here nor there in comparison to my granddaughter who has been diagnosed with Behçet's disease and TRAPS.  My daughter (who is also very ill) is now being tested for the TRAPS gene.  We share a home & I am their carer...........

MrsLogic

Hi May

Welcome to the site, I trust that you will find it a useful resource.  

Kind regards

May

Thank you x

Sam_Alumni

Hi @may How are you all getting on? Did your daughter get tested?  We now have a rare conditions group that you might like to take a look at and share your experiences.