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24-hour carer for my husband

Hi I'm a 24 hour carer for my husband he is paralysed down one side, has dysphasia, cognitive and lots of other problems, but in general he is in good health. Its extremely hard work and there is (no me time ) so to speak other than when we get a regular carer for one hour, I'm nearly always stressed, not had a holiday for over 14 yes and missing out on a life, feeling sorry for myself sometimes and then remember just how must my husband feel, but because of his dysphasia he is not able to say, we feel like a number in a system, and not a very nice one, always having to verbally fight my husbands corner, then feeling frightened in case something happens, one company we had theft and abuse , another company couldn't maintain the care package because of staff leaving another company had to wear shoes and no shoe covers even when they showed my husband there be mud everywhere and dirt ( that felt like no respect for us or our home) now this company so far can't seam to get a regular team together ( within just over 3 months there has been 35 carers and sometimes 2 hrs late ? Its like nobody really cares and as we are not wealthy we rely on direct payments . Anyway I'm already moaning sorry just wish I had funds to set something more careing up plus a small holiday place that caters properly without the so expensive charges
Well everyone thank you for letting me have a moan
Take care
Well everyone thank you for letting me have a moan
Take care
Replies
Thank you for taking the time to write. Until 2015, my husband had to co-ordinate the care for his mother, who had vascular dementia and his brother, who has both mental and physical disabilities. It was a complete nightmare -there were different care teams carrying out the various roles, plus my MIL didn't like my BIL being cared for by anyone else but her! Oh my Lord!
We're always here for you
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Senior online community officer
Is there anyone else out there who has this that needs to chat ? Guess having a chat is a good start, we have no friends they all left us when this happened to my husband so there is no one to invite in for a coffee and guess what my husband would be shouting and going mad no doubt he won't get out of his bed and won't meet people easily, as he can't say exactly how things are with him due to his dysphasia it makes things even more difficult, and the cognitive problems its all rather not good for anyone who reads take care
Take care
Senior online community officer