Daughter with CFC syndrome — Scope | Disability forum
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Daughter with CFC syndrome

kiesha
kiesha Member Posts: 1 Listener
Hi I'm a parent to a 7 year old girl with a extremely rare condition (CFC syndrome) wanting to communicate with other parents 

Comments

  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,682 Disability Gamechanger
    Hi @kiesha
    welcome to the community.  Do you want to tell us a bit more about yourself and your daughter? What does CFC syndrome entail?


    Scope
    Senior online community officer
  • Blue Frog
    Blue Frog Member Posts: 358 Pioneering
    Hi @kiesha welcome to the community,  we are still going through the genetic testing stage and there is a possibility my little girl (4) might have something really rare too.  

    With some of these conditions being so incredibly rare, the chances of meeting another family affected by something like CFC are tiny, but we may be experiencing similar issues and this is a great place to chat to others x  


  • Alex
    Alex Scope Posts: 1,307 Pioneering
    edited March 2017
    Hi @Kiesha,

    How are you? Would love to know more about CFC syndrome, it's not something I've come across before.

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