If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Misdiagnosis?

pathayes
Member Posts: 2 Listener
my son aged 29 was diagnosed leucodystrophy three years ago he is now wheelchair bound ,he was diagnosed adhd as a child have now found that this could have been a misdiagnosis anyone else out there ?
Comments
-
Hi @pathayes,
Sorry to hear that you son was misdiagnosed. If I would be you I would seek one more time professional medical advice just to double check (If you can afforded I would recommended using private medical sector). On the other hands I would complain to Patient Advice and Liaison Services within hospital where diagnosis took place and request serious investigation.
I hope you will raise your voice and bring this to Hospital Attention.
Thanks
Iza -
thanks nick is now under professor cox at addenbrookes cambridge we are waiting for further confirmatiom from the 1000000 genomes project and Ive already made moves to take it further .It appears to be a common misdiagnosis which really should be looked at seriously by the support groups for add/adhd and autism its reasdonably simple to diagnose ith ct scans etc but doesnt seem to happen
-
What surface indicators are there, besides the misdiagnosed symptoms, or should it be a side precaution more automatically? Off to look it up now!Lucky unlucky
Guess my diagnosis,
It may help, but
Don't guess my kids's
Brightness
Categories
- 55.3K All Categories
- 10.8K Start here and say hello!
- 5.3K Coffee lounge
- 4.1K Disability rights and campaigning
- 1.6K Research and opportunities
- 160 Community updates
- 12.3K Talk about your situation
- 1.8K Children, parents, and families
- 840 Work and employment
- 600 Education
- 1.2K Housing, transport, and independent living
- 1.1K Aids, adaptations, and equipment
- 303 Dating, sex, and relationships
- 270 Exercise and accessible facilities
- 22.3K Talk about money
- 2.3K Benefits and financial support
- 4.5K Employment and Support Allowance (ESA)
- 12.8K PIP, DLA, and AA
- 2.7K Universal Credit (UC)
- 4.2K Talk about your impairment
- 1.4K Cerebral palsy
- 706 Chronic pain and pain management
- 718 Rare, invisible, and undiagnosed conditions
- 774 Autism and neurodiversity
- 953 Mental health and wellbeing
- 314 Sensory impairments
Complete our feedback form and tell us how we can make the community better.