more surgery and CP

rockchick

hi i have spastic cerebral palsey and my muscle tone and pain levels have detiorated  severely in the last fifteen years did the usual work/college / kids which i brought up alone without a thought and then i was told by my doctor that this was a result of surgery overuse of muscles and daily life i sometimes take up to thirteen pain killers a day before the pain subsides and have done physio nearly everyday for 30 years and yet today he has booked me an appointed for yet more and has mentioned surgery again which terrifies me i am terrified of anasthics and had three operations one when i was eight one when i was 12 and one when i was nineteen and even though he has said three is to many because it is so long ago he seems to think it might be more beneficial to have another op i would appreciate any advice or if anybody knows of any alternatives to surgery or physio therapy available on the nhs  thanks

Sam_Alumni

Hi @rockchick what a tough time for you! I have had quite a lot of surgery for my condition and so I can understand the fear and anxiety around having an operation. 

There is a thread here about surgery in adults with CP that might be good to look through.

@Jgeek @Noah @Rainbow_wheelz16 do you have any experience of this?

Sam_Alumni

Hi @rockchick how are you getting on?