Remaining politically neutral during General Election 2024


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Arthritis pain

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19BeAu65
19BeAu65 Community member Posts: 1 Listener
I suffer from Arthritis in both knees, in my right hip, and now it's in my spine. I feel totally useless, I could'just about " cope with the knees but now it's in my spine I feel like it's game over.I have 2 young daughters, who, rightly so, don't understand what Arthritis can do. I used to be so active, I ran every where, I loved my job collecting recycling, Dow I can barely walk,I also suffer with Bi-polar, I'm incredibly low and in so much pain... 

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  • Matilda
    Matilda Community member Posts: 2,593 Disability Gamechanger
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    Hi @19BeAu65

    Sorry that you are suffering with arthritic pain.  I have rheumatoid and osteoporosis arthritis.

    Maybe you could ask your doctor to change your medication including painkillers.

    As well as medication to control my RA I take Naproxen which isn't strong enough so I am going to ask my rheumatologist if they can prescribe a stronger painkiller.

    I have found freeze spray effective for controlling pain, including spinal pain, often for several hours at a time.
  • Alex
    Alex Posts: 1,304 Pioneering
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    Hi @19BeAu65

    Welcome to the community, and thank you for sharing. Sorry to hear that things are tough. I've moved your post to the dealing with pain category. You might find some of the other discussions here useful. 

  • WheelyRachel
    WheelyRachel Community member Posts: 64 Courageous
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    Oh sweetie your not alone , I've multiple immune conditions 2 being types of arthritis and yes I've spinal involvement. I to used to be very active and sporty. Over the ears thatas been the hardest thing to come to terms with,I kept my bike for 7 years hoping I'd be able to use it again but sadly that didn't happen. I can't even watch sports on Tv anymore. So I totally know how your feeling. Now I to cope with this have filled my days with other hobbies that don't need to much physical energy . I'm sure you kids have brighter your worst days and have even been helping you with day household tasks. Living alone I've got a assistance dog that's helps me. Please speak to your gp and specialists for better pain management.Maybe they could start you on pain block medication, this has helped me loads. Also if your still very depressed have you antidepressants reviewed as we do become immune to them so they may need adjusting or changing completely. Take care and if you ever wish to chat please message me.
  • Amy65
    Amy65 Community member Posts: 11 Listener
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    Have u been put on anti tnf biologics they help I have rheumatoid arthritis and spine problems anklossing spondlittis that affects my back and neck found only treatment works is these biologics as it rheaumtoglist x
  • ollieconure
    ollieconure Community member Posts: 53 Courageous
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    hi there i too have arthritis in both my knees and right elbow my arthritis was brought on by a accident in asda supermarket over 7 years ago they offered my compensation at time which was pretty good so i took it but regret that now because i wouldn't have ended up with this horrible pain everyday the amount of times a day my knees give away and i end up been on the floor which is even harder because i can't get up its dam frustrating and painful 
  • Amy65
    Amy65 Community member Posts: 11 Listener
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    It's a horrible condition u look fine so people assume there's  nothing wrong with u have any of u got pip my assessment was awful ended up in tears
  • ollieconure
    ollieconure Community member Posts: 53 Courageous
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    yes my assessor was good asked me why my arthritis stops me in doing everyday stuff i was truthful i say if you have a condition only you know what it feels like everyday, i came out with standard and standard
    just be truthful and you will be fine i went in with my walker because using sticks is harder to use with arthritis in right elbow to hard to use them
  • Amy65
    Amy65 Community member Posts: 11 Listener
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    Yea I came out with standard care to my hubby wants me to appeal but it's to stressful assessor kept saying why can't u do it told her due to arthritis she was awful kept saying to my hubby every time he said something I can see shouted at me quite a few times didn't have a clue about my condition or treatment but had it in for me hope she never gets these conditions lol karma 
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