Support for my Partner

Tiger17

My partner lives with a condition called Cerebellar Ataxia which effect his balance & speech. He also has Asperger's Syndrome and has a grade 3 brain tumour. He had 33 sessions of radiotherapy last May to help with destroying the cancerous cells in the tumour as they had noticed it was starting to transform. This year we recently went back and they told us the tumour had shrunk although not gone entirely. Reason they cant remove the who thing is due to his Ataxia as he would lose he line of vision and this would make life extremely difficult if he loses this well. He has been feeling very suicidal as he doesn't not want to live with this condition and in his words he wishes the tumour would end him.

What doesn't help is he has no social life (ie no friends) and I am the only one he has to support him. I am desperate to try and find him some form of help which is why I am reaching out on here. I am just finishing my last online session of CBT with italk and they have told to me reach out for support as this is the main area in my life where the difficulties remain and that is having no outside help.


If anyone out there can relate to any this or advise anything please let me know

Kind regards

Lisa

Alex

Hi Lisa,

Thanks for joining the community, and sharing your situation. That sounds really tough. 

Whereabouts do you live? I wonder if there are any local groups that might be able to help?

Are you also getting any financial support you might be eligible for? Scope has a grants and benefits checker.

Alex

Mind also have some information about supporting someone who's feeling suicidal which you might find useful.