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HNPP which is Hereditary neuropathy pressure palsy
Hi everyone, I am new to this site. I have HNPP which is Hereditary neuropathy pressure palsy. Last year I had my high rate motability taken from me as I changed to PIP. I didn't appeal at the time because I lost my mum and I had no fight in me. A year on and I am going to try for enhanced Motability as my condition has got worse and every day in a struggle but I'm finding it to hard to try and hide the fact that my independence is going and I feel so frustrated.