Find out how to let us know if you're concerned about another member's safety.
Genetic testing for CP

Clogheen
Member Posts: 4 Listener
Hi my 19 month Grandson recently had a brain scan to confirm he has Cerebral Palsy, however it was clear and now having genetic testing done,
He can't walk or talk but has started to move around on his back plus starting to sit up, I just wondered if anyone else has been through this and did the genetic tests confirm it was CP,,,,,,,,,,we have to wait for up to two months for the results which is a long time to wait
Thanks.
He can't walk or talk but has started to move around on his back plus starting to sit up, I just wondered if anyone else has been through this and did the genetic tests confirm it was CP,,,,,,,,,,we have to wait for up to two months for the results which is a long time to wait
Thanks.
Comments
-
Hi @Clogheen
welcome to the community, I have moved your post to the Cerebral Palsy category, it might also be good for you to have a read through the Parents and Carers group.Scope
Senior online community officer -
Thank you
-
Hi Clogheen.
A very big Welcome to you I do hope that we can help you ???
Please look through the above & let me know if I can help you further !!!
Steve. -
Thank you
-
-
I wasn't aware of any genetic tests for cp, as the condition is not genetic at all. It's caused by damage to the brain either during pregnancy, during birth or shortly after. Everyone I know has had a brain scan to diagnose theirs and see the extent of the small age and where in the brain it is. But I've never heard of generic testing since cerebral palsy is not genetic x
-
Hi JadeB we were told that it may show up on the genetic testing, however I feel they may be looking for something else to make a diagnoses, we will just have to wait and see what the results show,
My Grandsons symptoms are that of CP so it's just a waiting game for us now
Kind regards and thank you for replying
Brightness
Categories
- 52.9K All Categories
- 10.4K Start here and say hello!
- 4.8K Coffee lounge
- 4K Disability rights and campaigning
- 1.5K Research and opportunities to get involved in
- 148 Community updates
- 12K Talk about your situation
- 1.7K Children, parents, and families
- 756 Work and employment
- 574 Education
- 1.1K Housing, transport, and independent living
- 1K Aids, adaptations, and equipment
- 276 Dating, sex, and relationships
- 263 Exercise and accessible facilities
- 21.1K Talk about money
- 2K Benefits and financial support
- 4.4K Employment and Support Allowance (ESA)
- 12.3K PIP, DLA, and AA
- 2.4K Universal Credit (UC)
- 4K Talk about your impairment
- 1.3K Cerebral palsy
- 673 Chronic pain and pain management
- 698 Rare, invisible, and undiagnosed conditions
- 750 Autism and neurodiversity
- 923 Mental health and wellbeing
- 297 Sensory impairments
Complete our feedback form and tell us how we can make the community better.