If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

VNS Therapy Experience

Options
[Deleted User]
[Deleted User] Posts: 740 Listener
The user and all related content has been deleted.

Comments

  • Liam_Alumni
    Liam_Alumni Scope alumni Posts: 1,100 Pioneering
    Options
    Hi @DannyMoore,

    I'm so sorry for the delayed response and that no one has got back to you about this.

    Epilepsy Action, the Epilepsy Foundation and the Epilepsy Society all have information on VNS which you might find useful.

    I hope this helps!
    Liam
  • stargazer
    stargazer Community member Posts: 3 Listener
    Options
    Hi, My husband has a VNS. I can tell you it is has been a godsend for both of us. It has given him some control over his siezures for the first time in his life. He was unsure at first like you, whether to have it, but you have nothing to lose as it can be switched off or removed if you really do not like it. You still take your medication and it is not a cure but it is a clever little gadget. :)
  • Godfather1968
    Godfather1968 Community member Posts: 4 Listener
    Options
    Hi ,
    regarding VNS do you experience any voice problems?


Complete our feedback form and tell us how we can make the community better.
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.