Fed up of explaining!

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Roland
Roland Online Community Member Posts: 27 Contributor
edited October 2021 in Rare, invisible, and undiagnosed conditions
Does anybody else with an invisible disability get fed up of hearing their own voice over and over again explaining your disability?

Comments

  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    Yes! I am with you @Roland ! 
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @Roland.

    Welcome aboard the great ship (Scope About Disability)

    Yes I'm in the same "boat" as you.

    I think the term is "Banging your Head against a Brick Wall"
  • gnmeads
    gnmeads Online Community Member, Scope Member Posts: 187 Empowering
    Hi
    Yes definitely, can we help at all?
  • MikeBroderick
    MikeBroderick Online Community Member Posts: 234 Empowering
    Hi @roland:

    I can empathize. I don't get asked too often about my visible disability anymore, but I used to a lot when I was younger. Now I think people see me as older and aren't  really intrigued anymore :).

    How do you deal with it?
  • suzylou
    suzylou Online Community Member Posts: 21 Contributor
    am fed up of people not believing I have an illness because it is invisible!!
  • Nystagmite
    Nystagmite Online Community Member Posts: 595 Empowering
    Well don't explain then? I only explain to those who I absolutely have to.
  • loucat
    loucat Online Community Member Posts: 1 Listener
    Yes both my daughter and I have an invisabie disability (EDS)
     Especially when we use the blue badge. We get a few judgemental looks 

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