Joint Hypermoblity Spectrum Disorder

Andreasuperstar
Andreasuperstar Online Community Member Posts: 13 Connected
edited October 2021 in Rare, invisible, and undiagnosed conditions
Hi there, I'm in a strange place at the moment.  I've just had my diagnosis of fibromyalgia over turned and been re-diagnosed with Joint Hypermoblity Spectrum Disorder according to the newly revised diagnostic criteria. I am very much symptomatic!  Just saying Hi for now but very much looking forward to chatting with the rest of the community :)

Comments

  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @Andreasuperstar.

    A very very big welcome to you.

    Please  please let us know if there is anything specific that we can help you with.

    We have got a very active online community which would be a good starting point for you.

    Please let us know if you encounter any problems.



  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    Hi @Andreasuperstar welcome to the community - we had a guest post recently about hyper mobility and Ehlers Danlos Syndrome, I know its not the same thing but wondered if it was of interest to you?
  • Andreasuperstar
    Andreasuperstar Online Community Member Posts: 13 Connected
    Hi @steve51, thank you so much for a very warm welcome  :):)
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @Andreasuperstar.

    That's no problem at all.

    Please please let me know if I can help you in anyway ??
  • lisadaisy
    lisadaisy Online Community Member Posts: 4 Listener
    Hi everyone my daughter was diagnosed with hms/EDS and has had flavour since 13 and as a child was under GODH . Since having to turn to pip has been turned down even her MR has left her 2 points on living and 4 on mobility . We have now got to go to tribunal. Why is pip not taking this condition seriously I’m getting so tired of fighting 

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