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Joint Hypermoblity Spectrum Disorder

Andreasuperstar

Hi there, I'm in a strange place at the moment. I've just had my diagnosis of fibromyalgia over turned and been re-diagnosed with Joint Hypermoblity Spectrum Disorder according to the newly revised diagnostic criteria. I am very much symptomatic! Just saying Hi for now but very much looking forward to chatting with the rest of the community

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Comments

steve51

Hi @Andreasuperstar.

A very very big welcome to you.

Please please let us know if there is anything specific that we can help you with.

We have got a very active online community which would be a good starting point for you.

Please let us know if you encounter any problems.

Sam_Alumni

Hi @Andreasuperstar welcome to the community - we had a guest post recently about hyper mobility and Ehlers Danlos Syndrome, I know its not the same thing but wondered if it was of interest to you?

Andreasuperstar

Hi @steve51, thank you so much for a very warm welcome

steve51

Hi @Andreasuperstar.

That's no problem at all.

Please please let me know if I can help you in anyway ??

lisadaisy

Hi everyone my daughter was diagnosed with hms/EDS and has had flavour since 13 and as a child was under GODH . Since having to turn to pip has been turned down even her MR has left her 2 points on living and 4 on mobility . We have now got to go to tribunal. Why is pip not taking this condition seriously I’m getting so tired of fighting