so very fed up of having to justify my disability - invisible disabilities — Scope | Disability forum
New to the community? Remember to read our community guidelines and our community house rules.
Concerned about another member's safety or wellbeing? Find out how to let us know.

so very fed up of having to justify my disability - invisible disabilities

Michellesmith0506 Member Posts: 1 Listener
Hi I'm disabled but so very fed up of having  to justify my disability. I have Sma and Fibromaligha /chronic pain and to look at me I look perfectly well. I get so very down and suffer from depression and anxiety. X x x


  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,682 Disability Gamechanger
    Hi @Michellesmith0506 welcome to the community, I have an invisible impairment too and it is hard to be prejudged on the way we look.

    I actually wrote a guest post about it before I started working for Scope about there being more then meets the eye.
    Senior online community officer
  • steve51
    steve51 Member Posts: 7,154 Disability Gamechanger
    Hi @Michellesmith0506.

    Good evening & welcome to the "online community"

    Yes the "Invisable Disability" is far harder to "Justify" than a "Visable" one.

    Folling my Stroke in 1998 everyone keep saying how well I always looked !!!!

    I did think about having a tattoo with "STROKE" on the back off my "Head" but at the last minute I had a change of mind as I didn't want people "Stroking my Head"

    Please please let let us know if we can help you further ???
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,682 Disability Gamechanger
    @steve51 that made me laugh! I would have stroked your head if I saw that tattoo!!
    Senior online community officer
  • Nystagmite
    Nystagmite Member Posts: 603 Pioneering
    It's always tempting to reply "but you don't look stupid". I've given up trying to justify myself. It's even worse when it's from other disabled people who supposedly know better.
  • Catman
    Catman Member Posts: 64 Courageous
    edited July 2017
    I also have an invisible disability like yourself, I was diagnosed with Fibromyalgia in October 2015. I can also appear well but actually be in chronic pain and feel exhausted. I hate it when people ask me what I do for a living, my illness has robbed me of my job as an Aircraft Fitter and now my home. I often push through the pain as much as I can, play it down to my partner and maintain an active sex life, though I always suffer the next day. I never make promises anymore as there are often days when I can't 'just keep going '.. By the evening I'm usually exhausted and in chronic pain. Keep your chin up Michelle. 


Do you need advice on your energy costs?

Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.

Fancy a chat in our virtual coffee lounge?

Put the kettle on and have a chat in our coffee lounge with other members. We talk about hobbies, games and anything else you can think of!

Cerebral Palsy (CP) Online Cafe

Here's a new opportunity for people with CP or a similar disability (aged 20+) to get together and chat. The sessions are in partnership with CP Sport so you can find out more and meet people from both organisations.

Are you struggling?

Read our 'Coping with stress, low mood and isolation' support thread for a run-down of ideas on how to banish those blues and feel happier.

What do you think about the community?

Complete our feedback form and tell us how we can make the community a better space for you.

Information about COVID-19

If you have questions about the virus, please read our information and support which includes guidance on benefits, getting food and essentials and Cerebral Palsy.

Back to school this September?

Read tips on how to settle back in and handle any worries you or your children might be having this new term.