My daughter (14) has a condition called CRPS - complex regional pain syndrome

Joflan
Joflan Community Member Posts: 2 Listener
edited July 2017 in Families and carers
My daughter (14) is debilitated by a condition called CRPS - complex regional pain syndrome. it is affecting all four limbs and her back. I too am disabled. I have degenerative disc disease which greatly affects my mobility. a condition called NEAD - non epileptic seizures - which may be the onset of MS! I have a husband and two other children aged 11 and 9. Any one out there with a similar story? happy to chat

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  • steve51
    steve51 Community Member Posts: 7,121 Championing
    Hi @Joflan.

    It's great to have you onboard I do hope that we can help ???

    Yes I have got CRPS "self diagnosed"

    I have got "many many" more problems as well.

    There seems to be very very little known here in Birmingham.

    I think that I have done the "full monty" but still no good ????

    Ealier this year I had an appointment at the CRPS Hospital in Bristol which was a waste of time to be honest.

    Please please let me know if I can help you ???

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