Disabled people
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Receiving too many notifications? Adjust your notification settings.

any advice, support or guidance for epilepsy!

raf87raf87 Member Posts: 1 Listener
edited July 2017 in Disabled people
I am looking for any support, guidance or advice from anyone who understands epilepsy. i was diagnosed 2 and a half years ago and have been in total denial! i take all my medication as i am told to but recently i was in intensive care for 2 weeks ventilated due to seizures that could not be controlled. I have not recognized nor accepted my epilepsy until now. i ave been out of hospital three weeks, i recovered well to start but this seems to have plateaued. My left side remains weak, trembles and isn't coordinated, like a delayed response. Is this normal to have further damage after being seizing for so long? i have right side temporal lobe epilepsy, my left side is affected daily but this is now much more obvious since the time spent in ICU. I don't seem to be able to get a 'yes that is normal' answer from anyone, some doctors seem very vague with their responses and i need to start accepting my epilepsy but need some honest advice, support or guidance. 


Sign in or join us to comment.