any advice, support or guidance for epilepsy! — Scope | Disability forum
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any advice, support or guidance for epilepsy!

raf87 Member Posts: 1 Listener
I am looking for any support, guidance or advice from anyone who understands epilepsy. i was diagnosed 2 and a half years ago and have been in total denial! i take all my medication as i am told to but recently i was in intensive care for 2 weeks ventilated due to seizures that could not be controlled. I have not recognized nor accepted my epilepsy until now. i ave been out of hospital three weeks, i recovered well to start but this seems to have plateaued. My left side remains weak, trembles and isn't coordinated, like a delayed response. Is this normal to have further damage after being seizing for so long? i have right side temporal lobe epilepsy, my left side is affected daily but this is now much more obvious since the time spent in ICU. I don't seem to be able to get a 'yes that is normal' answer from anyone, some doctors seem very vague with their responses and i need to start accepting my epilepsy but need some honest advice, support or guidance. 



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