Cerebral Palsy
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.
Receiving too many notifications? Adjust your notification settings.

Has anyone seen a neurologist as an adult?

booky63booky63 Member Posts: 10 Listener
edited August 2017 in Cerebral Palsy
Hi, I am 54 years of age. At the age of 46 I was finally diagnosed with Spastic Cerebral Palsy, although my parents had a diagnosis at the age of 2. I would like more information particularly around my experiences (my learning particularly). I'm just wondering if anyone has seen a Neurologist as an adult, and whether you found the Consultation helpful. My medical notes didn't refer to the neurological side of my condition and that's sadly lacking. Even if I have to close the door on not knowing, I feel that meeting of the minds will help.

Replies

  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @booky63

    A very big welcome to our website and online community.

    Please have a good look at our home page where you will find lots of info and online community where you can contact outer members of our community with your current condition.

     Please please let us know if you require further help ???
  • LiamO_DellLiamO_Dell Member Posts: 1,114 Pioneering
    edited August 2017
    Hi @booky63,

    Welcome to Scope's online community! It's great to have you on board.

    Have you spoken to your GP about wanting to see a neurologist? I've moved this post into our Disabled People category, where other members of our community may be able to help you. You may also find our Cerebral Palsy group of interest, too.

    I hope this helps. If you have any other questions, then please do get in touch!
    Liam
  • booky63booky63 Member Posts: 10 Listener
    Hi @LiamO_Dell - yes I have at the age of 46 when I found out I had Cerebral Palsy. I went back to ask for my medical notes. I also went to see a Neurologist but couldn't help me any further in working through my symptoms because he wasn't a Neurologist specialising in Cerebral Palsy and sadly, he didn't know of anyone. I have since done 8 years of my own research and know more about what I deal with now. I think this is the problem with Cerebral Palsy; we may all have the same diagnosis but the damage to our brain differs from person to person. Hence the no research into the condition. Thanks.
  • booky63booky63 Member Posts: 10 Listener
  • [Deleted User][Deleted User] Posts: 689 Listener
    The user and all related content has been deleted.
  • booky63booky63 Member Posts: 10 Listener
    @DannyMoore - you're right, but not having had a diagnosis or not knowing what that diagnosis was, meant I had to start from scratch. After originally visiting a Podiatrist for some orthotics to help me walk better, who thought I had Cerebral Palsy, but wasn't certain, finally sent me on the path I took and that's when I went back to seem my GP to get my medical notes. I find it sad that there is very little help out there for adults with the condition, apart from what we already know. Once we turn 18 we're signed off and left to fend for ourselves, Specialist nurses if we need to see one. My Cerebral Palsy is mild enough not to need that help.
Sign in or join us to comment.