How Much To Pay For Respite?

Grace42

Hi - My child aged 9 yrs has Aspergers.  They have very significant sleeping problems and generally difficult and challenging behaviour at home (very argumentative and strong-willed.) We are under PALMS. I am a single parent and we are struggling alot at the moment, no doubt because of the hols, but I have reached the decision that I do need to look into future respite.  I don't think that the local authority would help: We live in a very modest 2 bed house but I have a few savings, in lieu of any pension.  I was thinking of asking a couple of friends if they could help out by having my child to stay with them for perhaps 1-2 days a month.  My child's behaviour would probably be OK with them and they might not notice the sleeping difficulties for the first few times. My child is likely to just lay awake in bed until they become more settled and then the screaming might start. Any suggestions as to what I should pay? I am a Carer so don't have any income but I can't expect/hope for them to help me for free. Thank you.

steve51

Hi @Grace42

Welcome to our website and online community.

I have attached some details on Respite Care from our website.

https://www.scope.org.uk/support/tips/parenting/respite-care

I do hope that this is ok but please please come back to me if you require any further help ???

Sam_Scope

@Debbie_Scope can you help at all?

Debbie_Scope

Hi @Grace42,

I think it's worth having an assessment by your local authority before you commit to paying for respite yourself. Even if you don't feel that you qualify, it's worth checking before you rule it out.

Take a look at the information about Carers' Breaks and Respite Care on the NHS Choices website.

It might also be worth looking at our sleep pages for some helpful tips to work on alongside finding out more about respite.

I hope this helps a little and if you need further advice, please let me know.

Best wishes
Debbie

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