13 month old daughter with CP, not making much progress with Physiotherapy
My baby girl was born 42 weeks +1. She was distressful during labor but we were never told as she picked up again. but there is no record of her heart monitoring 10 minutes before birth and argument by hospital is she probably was in position that it wasn't recorded. My pregnancy was low risk. But she was known to be a big baby as I had some extra scans.
She was born with low heart rate and no breathing. She was full term. It was traumatic birth. She was brought back to life and we were told she had brain injury of second grade HIE because of lack of oxygen to brain. She had MRI scan 10 days of her life showing basal ganglia injury. She was on ng-tube for 3 months and we were told its neurological issue but she started taking bottle at age of 3 months old, I trained her to suck on my finger but she never swallowed on her test by Speech and therapy team or swallowed fluid so slow that we were told we might need to get g-tube for her as she is not making much progress so far. She took tube out as always one night. My husband said let's try bottle. We have her bottle and she took it. initially she was crying and finished it in an hour but in next 24 hours she was so trained that she finished her bottle in front of therapist in 5 minutes and made them speechless (sorry for long story, It is big achievement for us as parents and we hope there are many more to come)
She is 13 months old now. She has partial head control, we have seen gradual progress with head control. current diagnosis is she has dystonia. She has stiffness in her arms, keep hands fisted but some use of arms in lying position. She doesn’t reach out for toys probably because of stiffness in her arms, although we help her reach out toys. She has low tone in upper trunk. Her legs seem to be better as she kicks very hard