Chiari malformation of the brain

Jude62
Jude62 Community Member Posts: 23 Connected
edited October 2021 in Rare, invisible, & undiagnosed conditions
Well helloooooo

Comments

  • Jude62
    Jude62 Community Member Posts: 23 Connected
    I have depression and Chiari malformation of the brain and other problems I am waiting to hear from the dwp about my assessment.
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    Hi @Jude62 welcome to the community :)
  • steve51
    steve51 Community Member Posts: 7,121 Championing
    Hi @Jude62

    Welcome to our online community and great website.

    Yes I also had a Brain Malformation (AVM) so please let me know if I can assist you with anything ????
  • Jude62
    Jude62 Community Member Posts: 23 Connected
    What symptoms do you have
  • steve51
    steve51 Community Member Posts: 7,121 Championing
    Hi @Jude62

    I had a left sided Stroke in 1998.

    Due too the little "Devil"

    1. No hearing in ear.
    2. No vision in eye.
    3.No feeling head to toe.
    And much more !!!!!!!!!

    Rightsided Chronic Pain 24/7.
    Due too "Botched"  
    NHS Radiation Operation !!!!!!!!

    So I no longer have a "GOOD" Side !!!!!!!!!!!!







  • Jude62
    Jude62 Community Member Posts: 23 Connected
    Really bad pain in the head on coughing laughing bending etc memory loss and lack of coordination numbess etc
  • Jude62
    Jude62 Community Member Posts: 23 Connected
    Choking on food 
  • steve51
    steve51 Community Member Posts: 7,121 Championing
    Hi Jude62

    How are things today ???????


  • hkhan1347
    hkhan1347 Community Member Posts: 2 Listener
    Hi I'm new on here and just been diagnosed with chiari malformation 
    still understanding which of my  symptoms are caused by that and which are caused my something else 

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