Hi, my name is mags57!
mags57
Community Member Posts: 1 Listener
I am a Fibromalgia sufferer. And it can be hard when people around you think there is nothing wrong with you. Or they say aren't you looking well? If I had a £ for everyone that said this. I'd be a millionaire by now. Well I'm not. I'm one of those who try to look well. But inside I'm in a lot of pain. Don't sleep well due to this. Latest is my blood pressure looks to have no signs of coming down. And all they do is blood checks that come back normal. And then another blood pressure machine for a week to monitor it. Then a review on it all. But nothing more. What's all this about. And I keep feeling worse. Pains in the legs. Spasms and cramp in my arms. Still nothing is done. What's it all about? Can anyone give a reason?
Sorry nice nice to meet you all. X
Sorry nice nice to meet you all. X
Comments
-
Hi mags, this is my 1st time here. I have degenerative spondylolisthesis, people see me as the lady with the bad back, in the past I was awarded dla as it was called then for life, its never going to get any better, but just 2yrs down the road it was took away so I know where you're coming from. Unless these people who examine us actually had any pain to deal with at all, they might have an insight to a little of what we go through daily. I can only hope you do manage to get some sleep but I know how hard that is. I think I might have fibromyalgia because of what friends tell me who have it.
-
Hi @mags57
A very very big welcome to our online community.
It's great to have you onboard.
Please please let me know if there is anything that I can help you with ??????????
Categories
- All Categories
- Take action
- Talk about cerebral palsy
- Talk about life and experiences
- Read our house rules
- Read recent posts
- Recent posts
- Ask a question
- Ask questions
- Say hi
- Site guide
- 16.4K Start here and say hello
- Say hello
- Chat to others
- Chat with others
- 7.8K Coffee lounge and general chat
- Play a game
- Play some games
- 123 Games room
- 1.8K Actions and opportunities
- 186 Information and updates
- Change your profile picture
- 25.9K Talk about life
- 6.2K Everyday life
- 448 Current affairs
- 2.6K Families and carers
- 890 Education and skills
- 2K Work
- 630 Money and bills
- 3.8K Housing and independent living
- 1.2K Transport and travel
- 676 Relationships
- 1.6K Mental health and wellbeing
- 2.6K Talk about your impairment
- 885 Rare, invisible, & undiagnosed conditions
- 950 Neurological impairments and pain
- 1.3K Autism and neurodiversity
- 2.3K Cerebral Palsy
- Get support with cerebral palsy
- 41.8K Talk about your benefits
- 6.2K Employment & Support Allowance (ESA)
- 20.6K PIP, DLA, ADP & AA
- 9.5K Universal Credit (UC)
- 5.4K Benefits and income