Hi, my name is mags57! — Scope | Disability forum
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Hi, my name is mags57!

mags57 Member Posts: 1 Listener
I am a Fibromalgia sufferer. And it can be hard when people around you think there is nothing wrong with you. Or they say aren't you looking well? If I had a £ for everyone that said this. I'd be a millionaire by now. Well I'm not. I'm one of those who try to look well. But inside I'm in a lot of pain. Don't sleep well due to this. Latest is my blood pressure looks to have no signs of coming down. And all they do is blood checks that come back normal. And then another blood pressure machine for a week to monitor it. Then a review on it all. But nothing more. What's all this about. And I keep feeling worse. Pains in the legs. Spasms and cramp in my arms. Still nothing is done. What's it all about? Can anyone give a reason? 

Sorry nice nice to meet you all. X


  • bobbiesgirl
    bobbiesgirl Member Posts: 1 Listener
    Hi mags, this is my 1st time here. I have degenerative spondylolisthesis, people see me as the lady with the bad back, in the past I was awarded dla as it was called then for life, its never going to get any better, but just 2yrs down the road it was took away so I know where you're coming from. Unless these people who examine us actually had any pain to deal with at all, they might have an insight to a little of what we go through daily. I can only hope you do manage to get some sleep but I know how hard that is. I think I might have  fibromyalgia because of what friends tell me who have it.
  • steve51
    steve51 Member Posts: 7,154 Disability Gamechanger
    Hi @mags57

    A very very big welcome to our online community.

    It's great to have you onboard.

    Please please let me know if there is anything that I can help you with ??????????


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