Disabled people
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

DDD - degenerative disc disease

tosh1064tosh1064 Member Posts: 2 Listener
edited October 2017 in Disabled people
Hi. I'm new to all this and wondered if anyone has experienced the pain associated with degenerative disc disease? 
I had my MRI in August (also the same day,  nerve conduction test). I am still waiting a follow up appointment with the neurologist regarding the results. 
However,  after a visit to my GP,  because of chronic pain in my lower back and now numbness in my left leg, she informed me that the MRI results were on file and there was evidence of DDD. 
I am struggling terribly with pain,  and finding every day "simple" tasks really difficult. 
I also have a disabled son (8yrs) with down syndrome and congenital heart disease, who,  me and my husband care for. 
My GP has said I need to wait for a follow up hospital appointment to discuss with the neurologist. 
Any tips? 
Many thanks
Jo. 

Replies

  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    Hello Jo and welcome

    So sorry you are having to go through this, life can be really harsh.
    Have you applied for PIP ?
    Money will not help with the pain, but can help getting things to make life a little easier.

    CR
    Be all you can be, make  every day count. Namaste
  • tosh1064tosh1064 Member Posts: 2 Listener
    Thanks for your reply.  I wasn't aware that I could apply for PIP but I presume I will have to await for official diagnosis /confirmation from the neurologist? 
    Jo
  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    Hi @tosh1064,

    So sorry to hear that you're in pain. Hopefully you'll be able to pick up some good hints and tips from other users. Do keep us updated with the diagnosis process!
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @tosh1064

    A very very big welcome to you !!!!!!

    It's great to meet you and I do hope that we can help you with this ????

    Yes living with pain can be very very difficult/hard at times.

    I don't find my medications helpful but I have too live with the "side effects"

    I do find "Distraction" very very use full indeed.
  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    tosh1064 said:
    Thanks for your reply.  I wasn't aware that I could apply for PIP but I presume I will have to await for official diagnosis /confirmation from the neurologist? 
    Jo
    First try taking the self test
    http://www.mybenefitsandwork.co.uk/pip/indexxx.php

    this will give you an indication

    CR



    Be all you can be, make  every day count. Namaste
  • TopkittenTopkitten Member Posts: 1,263 Pioneering
    Welcome.

    DDD is similar to what I suffer. I'd suggest requesting a referral to the Pain Clinic. Look into something called Pacing as this can help tremendously. The Pain Clinic teach it but I am sure you can Google it to get an idea of how it works.

    The main thing to learn is to not try to do what you have always done. Reduce your 'workload' and take breaks to rest. Life is so much easier when you manage the pain.

    There is no cure for DDD but it can end itself, it depends how many disks become involved. The pain levels will vary with the number of disks collapsing too. You will be told that you have to manage the pain for as long as it lasts and this can be the hardest thing to cope with. Constant pain and numbness make life very complicated.

    TK
    "I'm on the wrong side of heaven and the righteous side of hell" - from Wrong side of heaven by Five Finger Death Punch.
  • seasideMarkseasideMark Member Posts: 9 Listener
    Ive had DDD for 13 years now, diagnosed in 2005 with 5 collapsed disks, anyone who knows what one disk can do to nerves will understand the pain involved. 
    With my experience, pain management has and is one big experiment to find something that helps with the pain and you have to decide what your willing to trade to be pain free, although i never have been.
    What i mean by trade off is this, when i was given morphine and fentynl, it was almost like magic, pain was low and it felt like i could finally live with my condition, what they dont tell you, is you turn into a zombie, your almost in a trance like state and you sleep a lot, so i look back and feel i lost nearly 8 years of my life because all pain managements job was to help with pain.
    Epidurals are great, but only last a couple of months and you can only have two.
    Im now on longtech slow and quick release with gabapentine and robaxin. Im in pain, but its tolerable and i can hold a conversation. Im due a new mri to see how things are changing.
    I wish someone would have warned me how some of these drugs can affect your mental state, but to be honest, i was in so much pain, so thats all you focus on.
    Best of luck
  • Tiatruffle49Tiatruffle49 Member Posts: 6 Listener
    I have ddd plus stenosis can't understand why Ur under neurology I'm under spinal yes so. Etimes they go hand in hand but neurology doesn't really deal with bone .. Ask to go to pain clinic but if you get a good one she should be able to give you an epidural or nerve root block or facet joint injections to see if any of that helps but spinal constant an do that as well I'm on pain patches but only after I've gone through different medication through the years but I'm allergic to so much stuff too... Pace yourself but also keep moving ask to go on pain management course which will give you ways to pace hints tips how to move do some exercise .. Keep Ur chum up it is hard .. But we're here if you need to talk  
  • deano5278deano5278 Member Posts: 38 Listener
    Hi there I'm sorry I'm not a big talker I'm really trying to see what help is out there I'm 32 years old and was a carpet fitter for 13 years until about nine months ago ago I got put on limited capabilities only , I am parsley deaf in both ears having to were hearing aids with are degenerate and yesterday I got my results back for my back I've been suffering with pain like made alover my back and shoulders my results have come back as follows c5-6 degenerate disc bulge with moderate foraminal stenosis and chronic looking involvement in existing c5 never .
    Also t7-8 and t9-10 degenerate disc osteophyte but not spinal stenosis or never compression .
    L3-l4 degenerate disc bugle but not nerves or Spinal stenosis. Thank dean I'm just looking for people with similar problems give there views to what I have as I really don't have a clue be the specialist did a poor job of that thanks 
  • poppy123456poppy123456 Member Posts: 22,218 Disability Gamechanger
    deano5278 said:
    Hi there I'm sorry I'm not a big talker I'm really trying to see what help is out there I'm 32 years old and was a carpet fitter for 13 years until about nine months ago ago I got put on limited capabilities only , I am parsley deaf in both ears having to were hearing aids with are degenerate and yesterday I got my results back for my back I've been suffering with pain like made alover my back and shoulders my results have come back as follows c5-6 degenerate disc bulge with moderate foraminal stenosis and chronic looking involvement in existing c5 never .
    Also t7-8 and t9-10 degenerate disc osteophyte but not spinal stenosis or never compression .
    L3-l4 degenerate disc bugle but not nerves or Spinal stenosis. Thank dean I'm just looking for people with similar problems give there views to what I have as I really don't have a clue be the specialist did a poor job of that thanks 
    Question has been answered on your other thread here. https://community.scope.org.uk/discussion/51168/ddd-degenerate-disc-desies#latest

    Community champion and proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice i have given to members here on the community.
Sign in or join us to comment.