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Brain tumour and pip stopped after review .
bobtweenie
Member Posts: 20 Connected
I have a cavernous sinus meningioma which is benign and inoperable . I was awarded pip in 2015 until June 2018 at both standard rate . The brain tumour is central in my brain pressing down on crucial nerves , it bled causing stroke symptoms resulting in a weak left side a numb face and six nerve palsy of the left eye . I had stereotactic radiosurgery in 2016 which makes me really tired . The tumour has not responded to treatment and is still there meaning I have 3 head MRI scans a year . 3 visits to the surgeons and MDT meetings with brain ENT surgeons and oncologists 3 times a year . I see the eye surgeon twice a year . I had my pup review in June and a home visit by a nurse from Capita in September who said she didn't need to see all my medical letters etc or medication which I take which is 12 tablets a day . Today I've received the dreaded letter from pip they've stopped my money . Surely that's right .
Replies
I am v sorry you have gone through enough without having to fight another battle
i hope you win your case
No it is not right but alas not uncommon
Have you asked for a copy of the assessment report ?
You only have a month from the date on your decision letter including postage back to apply for a mandatory reconsideration.
It is important to understand the points system, descriptors and the criteria for an award. a good place to start is the self test on the B&W site
http://www.mybenefitsandwork.co.uk/pip/indexxx.php
there is also lots of info on this site about appeals
Please come back with any questions
CR
Though only 20% of mandatory reconsiderations (MRs) succeed, 65% of tribunal appeals do. Scope site (look under Advice and info), CAB site and Disability Rights site all have guides to MRs and appeals.
PIP eligibility for points depends less on your diagnoses themselves and more on how these affect your ability to undertake daily tasks and to walk.
Your assessor sounds incompetent, as many assessors are - which is why so many appeals succeed.
Are you considering appealing the decision? If so, you may find this information on the appeals process helpful. Do let us know how you get on.
I had a 0 point assessment after high rate DLA. Glad you have asked for MR this may come back the same then go to Tribunal. I had an Occupational Therapist for consult, knew nothing about my neuro problems! Keep at them all the way. I have been waiting 6 months for tribunal but don't give up! How can they agree you have trouble engaging with people then 0 points, same as my assessment, they told me I could go out alone without getting lost by sitting behind a desk? If you can see someone at CAB they helped me a lot. Also lots of help here.
Hi Phillip and welcome
When did you get refused ? did you/have you appealled ?
If we can help in any way, can you start a new thread to save confusion
CR
Sounds like you are on top of things. I hope you get the result you desreve without needing to go to tribunal
CR
Did your PIP renewal get awarded in the end?
Ive only just seen the post you wrote....
I Was amazed that the similarities to my condition are almost identical..... I too have a sinus meningioma brain tumour that is inoperable. Mine too is encasing, surrounding and narrowing the carotid artery. Pressing on crucial nerves. I have MDT meetings with brain surgeon, neurologist, Nuero oncologist specialist nurse, neuro consultant and eye consultant and ENT. Have annual brain scans & am under eye consultant, ENT consultant and neurologist..
I'm in the process of my first pip review. Just sent off the forms. I also sent my brain scans that shows it continues to keep growing. My recent one shows its now spread to my frontal lobe and optic nerve as well now.
This causes me personality changes of which are depression & anxiety and am absolutely dreading the assessor and doing the face to face as I really struggle to explain myself f2f to strangers and my anxiety is going through the roof.
Where the brain tumour is crushing my inner carotid artery (which is the artery that supplies blood & oxygen to the brain) will eventually cut off my oxygen & blood to my brain so will be like having a massive stroke. The consultant confirmed this outcome to me...and yet we have to try and explain 'how this affects us' to a stranger judging us.
I think this pip reviews puts added stresses on people who are already very ill. I am really hoping I can get through this next review but don't think I can continue to keep going through the process anymore on top of my condition. It is too draining. I was hoping for a longer award this time (if at all)
I'd be grateful if you could let me know the outcome of your pip renewal. I really hope that you got it awarded in the end.😊
I'm so glad that you got it in the end. It's awful that you had to go all through the process again though so soon after getting the tribunal award.
I think this causes vulnerable/seriously ill people a lot of added stress and worry to keep reapplying, on top of already struggling with their condition.
Evenmoreso when it is obvious that our condition is not going to go away. I sent evidence of this, that I continue to deteriorate as it is a progressive neurological disease, and continue to get worse and evidence of no realistic chance of any improvement.
I have really struggled with the added stress which is making my conditon worse, and sent evidence of this from my Macmillan counsellor. I really hope this time I can get a longer award so that I will not have to go through this again.