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Hello everybody, my name is JiJhita! My friends call me G

JiJhitaJiJhita Member Posts: 8 Listener
I have had Renal problems since the tender agemail of 15 years. What' your story? I think now more than ever we need to talk to each ther,  and help and make a stronger effort to show the goodness we all have come to acquire and share when illness strikes. Sometimes it makes you more of a human being. We need to remember our strength, for eachother. Let' share and help our brothers and sisters.  If I can help, please say hello.

Replies

  • CockneyRebelCockneyRebel Member Posts: 5,258 Disability Gamechanger
    Hello G and welcome

    Thank you for joining our community, please have a look around and come back if you have any questions

    CR
    Be all you can be, make  every day count. Namaste
  • Pippa_ScopePippa_Scope Member Posts: 5,856 Disability Gamechanger
    Hi @JiJhita, welcome to the community! Would you like to tell us some more about yourself and your story?
  • JiJhitaJiJhita Member Posts: 8 Listener
    Hi Pippa. What a nice name
  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @JiJhita

    Hello & a very big welcome to our community.

    Yes you are spot on this is something that I'm very passionate about !!!

    Please please let me know if I can help you in anyway ????

    Many thanks.
  • JiJhitaJiJhita Member Posts: 8 Listener
    I did write more than the abone.  However it seems to be missing
  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @JiJhita

    That's very very strainge please please leave it with me.

    Many thanks.
  • Pippa_ScopePippa_Scope Member Posts: 5,856 Disability Gamechanger
    Oh no, sorry to hear that what you've written has gone missing @JiJhita. Technology can be a pain sometimes! 
  • JiJhitaJiJhita Member Posts: 8 Listener
    I'l try accessing via pc rather than (not so) smartphone
  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @JiJhita

    That's a good idea please let me know if you need a hand ?????

    Many thanks.
  • JiJhitaJiJhita Member Posts: 8 Listener
    Thank you very much @steve51

    So what'should your own stories if I may ask.

    I find that once people start sharing and talking, they start to realise that there are similarities in experiences. It's comforting to know you are not alone and ideas get shared. Healthcare organisations do shared ownership well to manage the physical - pain, medications, appointments but I think we have an emotional/spiritual need that is often overlooked. Saying this, services in this area are understandably stretched. However I'm talking more on a 1to1 personal and human need to connect with the nurses and doctors who often have no time to allow connection and rapport. I think it is such a gift when you walk away from an an appointment knowing you have been heard.

    I have had a bad experience to divulge a vested interest. However, I want to look toward a solution. Like I said before I often wonder 'How can I help you (doctor nurse) , to help me?'
  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @JiJhita

    Thank you very much for your kind words.

    They are very much appreciated !!!!!

    Many thanks.
  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @JiJhita

    I'm very sorry but I forgot to mention my stories !!!!

    Here's a brief run down:

    1998: Stroke (left side) at the age off 32 whilst on holiday in Spain.

    1999: More Brain Surgery (No:2)

    2000: Given all clear (mins) before more surgery.

    2000: Started a new job in one off my former rehab units.

    2000: We had a second child.

    2000: Returned to driving again.

    2005: "Disaster" started getting Stroke symptoms in my righside.

    Sorry but as you can see I have been a busy boy ????
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