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Fybromyalgia

Elky1
Elky1 Member Posts: 15 Connected
My hospital consultant surgeon says that I have Fibromyalgia... My GP says it does not exist and is a load of nonsense. I think the consultant knows better, what do you think? 

Comments

  • steve51
    steve51 Member Posts: 7,153 Disability Gamechanger
    Hi @Elky1

    Welcome to our online community it's great to meet you.

    Yes Fibromyalgia is here so your GP is wrong.

    Here's some info for you please have a good look.

    https://community.scope.org.uk/discussion/35522/fybromyalgia

    https://community.scope.org.uk/discussion/36148/help-with-fibromyalgia-stiffness-and-pain

    https://community.scope.org.uk/discussion/34139/fibromyalgia

    Let me know if I can help you with ?????

  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,793 Disability Gamechanger
    Hi @Elky1 - I have a condition similar to fibromyalgia that often gets labelled as nonexistent, and I would definitely advise seeking a second opinion. Doing so may open up many more support options that you otherwise may not be able to pursue. I hope this helps, and in the meantime you may be interested in our chronic pain discussions.
  • Elky1
    Elky1 Member Posts: 15 Connected
    Thanks all. I am in the process of registering with another practice as I cannot trust my GP anymore. It's a long story but to be brief I have found out he is using his staff to spy on patients via Facebook and wants me off his lists. Hopefully the new GP will be honest and decent and do the job he/she gets paid for. 
  • deb74
    deb74 Member Posts: 777 Pioneering
    hi elky1. a few years i got a really nasty vertigo bug and got really ill. a friend of mine looked straight at me and said you have got ME. he has had it for 30 years. i told him what my symptoms were. i then wrote down a list of my symptoms and took it with me to the doctors. the doctor read the list and told me it was probably a thyroid problem, when he realised it was not my thyroid he gave me a 24 heart monitor and when he saw my heart rate was normal he accused me of making it up and said it was all in my head. some doctors refuse to believe either fibromyalgia or ME exist. as for registering with another i have done exactly the same. my old doctors were always mis-diagnosing me.
  • Elky1
    Elky1 Member Posts: 15 Connected
    Sorry its taken so long to respond and thanks for your contributions, much appreciated. My new doctors are first class and doing everything they can to sort out my many health issues. Most of this should have been sorted out be the previous shower but at least I now have good caring GP's that actually care. 

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