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I'm 56yrs old and had ESA stopped after an assessment.

Tiffy1691
Tiffy1691 Member Posts: 25 Connected
Call me Tiffy. I'm 56yrs old and had ESA stopped after an assessment. I'm disputing the decision. Am so scared cos I know I'm going to struggle.

Comments

  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,799 Disability Gamechanger
    Hi @Tiffy1691, and welcome to the community!

    I'm so sorry to hear that you didn't get the outcome you were hoping for. Scope have some great advice on appealing a DWP decision that you may find useful. Keep us updated and we'll do what we can to support you!
  • steve51
    steve51 Member Posts: 7,154 Disability Gamechanger
    Hi @Tiffy1691

    It’s great to meet you this afternoon Tiffy

    I’m so sorry to hear that you have had your ESA stopped.

    Is there any “help / support that I can offer you???????

    Please please let me know.

    Many thanks.
  • Tiffy1691
    Tiffy1691 Member Posts: 25 Connected
    Thankyou guys. This is such a big thing when you have to prove you have problems. I know there are people much worse than me but when you struggle with  things everyday and you know you're not as you used to be it makes you tired. Sorry for being miserable but it's nearly Christmas and i can't do anything for my family. Bless you for the welcome x
  • debkenzo
    debkenzo Member Posts: 110 Pioneering
    Hello Tiffy.
    Welcome to the site.  My name is Debbie.  I am quite new here and find the site to be very informative, friendly and safe to use.  I hope you find the help that you need.  :)
  • Tiffy1691
    Tiffy1691 Member Posts: 25 Connected
    Hi all, 
    I'v been to see someone at citizen's advice and started the dispute/appeal process. I've also attended a few job centre appointments and the fact that the job centre staff were all positive and smiling but the advice guy seemed the complete opposite it really makes you worry more! I hope everyone manages ok whatever life throws at them xx
  • macca10
    macca10 Member Posts: 9 Listener
    I have a appeal on the 8th January.I have very bad back  problems.disc diease and IBS.I am in constant pain.I dont know why I have to go to court to prove this,when they have all the evidence.This is very very stressful and to top it all ,i now got a letter frm DLA to change to PIP.To me it's almost like they want to pull me down with this constant worry.Which is working.
  • macca10
    macca10 Member Posts: 9 Listener
    Tiffy.
    I would say don' give up.You have gone to the right place for advice with your appeal.good luck.I waited 8 months to get my date for my appeal on the 8 January.I was claiming half pay on ESA until the outcome.I had to appeal 2 years ago and won then.I have not got any better,so I don' know why I have to go through this again.I will update on here on the 8th.
  • thespiceman
    thespiceman Member Posts: 6,390 Disability Gamechanger
    edited January 2018
    Hello @macca10 Welcome to the forum.  Pleased to meet you.  Sorry what you are going through.  This is a message of support.  I do understand what you are going through.  You have done the right thing coming on here.  This helps.  The stress and worry I am afraid is the big concern.  I had my assessment last year for  ESA  I know that is hard and difficult not only mentally.  The constant anxiety.  I have been there.  I hope and pray that you stay positive.  I know that is not easy and I do not wish to be patronising.  I have been in your situation.  I am waiting for PIP assessment.   I am still on the old DLA. This is due maybe this year I do not know.   I hope not because car contract ends wishful thinking.  If and when I have to look at options. I just know being on here I get the help and support I need.  Nice to talk to you and best wishes in what happens
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
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  • Tiffy1691
    Tiffy1691 Member Posts: 25 Connected
    Just read through everyone's posts and i have a question.  I still get PIP but ESA has stopped. If you continue getting PIP will that payment continue or will that stop too and if it doesn't does that show a disability has been recognised?
  • CockneyRebel
    CockneyRebel Member Posts: 5,217 Disability Gamechanger
    Hi Tiffy

    PIP is non means tested and will continue as long as you meet the criteria. Esa has nothing to do with PIP the criteria is different for each

    CR
    Be all you can be, make  every day count. Namaste
  • CockneyRebel
    CockneyRebel Member Posts: 5,217 Disability Gamechanger
    Hi macca and welcome

    Be aware that DLA and PIP are very different and being in receipt of DLA does not mean you will get a PIP award

    It is important to understand the points system, descriptors and the criteria for an award. A good starting place is the B&W self test

    http://www.mybenefitsandwork.co.uk/pip/indexxx.php

    If you want an advanced look and a practice PIP form ( it cannot be sent in )
    one of our members, Chris, has produced one that you can fill in on line

    http://www.mediafire.com/file/iizytw2satztx7b/Pip+2+PDF+Fillable.pdf

    CR



    Be all you can be, make  every day count. Namaste
  • PjDay
    PjDay Member Posts: 9 Listener
    A Passport to ESA

    I get ESA (Support Group) and didn't have a face to face assessment and didn't have one for PIP either. I think if you send the right NHS supporting evidence to score you enough points, they don't need to see you and just do a desk top assessment.  

    A passport to ESA is given if you are incontinent. Many disabled folk suffer from this, but not all get it assessed - it is worth asking your GP for a referral if you do suffer and want to be in the ESA Support Group.

    I hope this tip helps.
  • tomm
    tomm Member Posts: 236 Pioneering
    edited January 2018
    You will need more than a letter from your GP, a report from a gastroenterologist with a diagnosis of a condition, and also why continence aids wouldn't be appropriate in your specific case  at the minimum  and that is no guarantee that a F2F wouldn't be required, and by itself may not get you a LCW nevermind LCWRA  award
  • PjDay
    PjDay Member Posts: 9 Listener
    I can only speak from my own experience - I have Secondary Progressive Multiple Sclerosis and found that if you have problems every week you will get or should be allocated the full 15 points. The incontinence only needs to happen once a month to qualify. Please try and get medical evidence to take to your medical with you that way it may save you from having to go to tribunal. Any NHS evidence you take has to be taken into account. I supplied a letter from my GP plus my Care Plan from my MS Nurse which mentioned this, and which pads I have delivered. 

    When I went to the Continence Adviser she just scanned my bladder, asked a few questions then gave me a form to record how much I drink each day and how much I pee over over three days and how many times I wet my pads. The District Nurses then ordered the pads for me which are delivered every 12 weeks.

    Many neurological conditions cause incontinence including including anxiety. Just thought I'd mention this. 

    https://www.mstrust.org.uk/a-z/incontinence

    https://www.calmclinic.com/anxiety/symptoms/incontinence

    https://www.nhs.uk/conditions/urinary-incontinence/

  • Tiffy1691
    Tiffy1691 Member Posts: 25 Connected
    Hello again, hope you all had a good Christmas and New Year.  I wish you all the best for 2018.

    After reading PjDays post about incontinence brought back how shocked i was after my assessor and the CAB advisor said the same thing. That is that I would be expected to wear incontinence pads to work!!! How lovely. Also that my walking problems could be resolved by the use of a wheelchair which could even be kept at my workplace
  • Tiffy1691
    Tiffy1691 Member Posts: 25 Connected
    Oops was i timed out in the previous post?

    I added more that doesn't seem to have saved where I explained my health problems. I think I was looking for confirmation from you guys that my problems are real because I keep feeling I'm being regarded as a fraud and every once in a while I get anxious about it all. Thanks for listening xx 

    Love and strength to you all 

    Tiffy  xx
  • Tiffy1691
    Tiffy1691 Member Posts: 25 Connected
    My mandatory reconsideration came back with an extra 6 points awarded on top of the 6 points I was initially given. 
    Sent the appeal off last week so fingers crossed.
  • thespiceman
    thespiceman Member Posts: 6,390 Disability Gamechanger
    Hello @Tiffy1691 Pleased for you,  pray and hope wish you the best.

    Always here to listen, sending a message of support.

    Hope you are OK 

    Take care
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • Tiffy1691
    Tiffy1691 Member Posts: 25 Connected
    Apparently when you appeal after having ESA stopped you're supposed to go on ESA at assessment rate. I didn't know this until I rang CAB this May after being on JSA since end of Nov last year. 
    I now know that until the tribunal decision has been made I remain on ESA at a/rate. I feel so stupid!
  • debkenzo
    debkenzo Member Posts: 110 Pioneering
    edited June 2018
    Hi Tiffy
    Please try not to feel stupid.  The DWP are ******** and will not tell you everything.  I had exactly the same experience.  It took me months to find out that I was entitled to the assessment rate while awaiting my Tribunal Hearing.  My Tribunal hearing is today at 10am and of course i am wide awake.  Who can sleep normally under such conditions?  
  • Tiffy1691
    Tiffy1691 Member Posts: 25 Connected
    Bless you debkenzo.
    I might have read several times that i should have gone onto assessment rate. My memory is so poor lately. 
    Good luck for today. 
    I will keep my fingers crossed for you xx
  • debkenzo
    debkenzo Member Posts: 110 Pioneering
    Hi Tiffy
    Thank you for your lovely reply.
    I was in the tribunal hearing for 10 minutes.  I had won my appeal before i even walked into the room.  The amount of strong medical evidence I have from different consultants etc was enough to obliterate the DWP.  BUT, it took me over 7 months to accumulate all of my medical evidence.  The judge and doctor asked me just 3 questions and one of those was to confirm my name.  They saw what they needed to see by the physical and psychological state of me!  It is a total disgrace that people are being put through this torture and humiliation.  I am completely exhausted and because i have been fighting this nightmare since July last year, I now simply feel like collapsing! 
    To All you lovely people.....GET AS MUCH MEDICAL EVIDENCE AS YOU CAN :)
  • Tiffy1691
    Tiffy1691 Member Posts: 25 Connected
    Great result. You just try and relax now. Let all that anxiety and frustration drain away. I can imagine the ordeal you've had but the battle is won now. Xx
  • debkenzo
    debkenzo Member Posts: 110 Pioneering
    The panel Judge and Doctor were both genuinely kind, patient and understanding.  Just sounds like some of those Medical Assessors but the difference with the Tribunal Panel is that they are not going to stab you in the back once you have walked out of the room and write lies about you!  These Panels members have insight and know exactly what is going on with the DWP ar*e Holes!  I'm disappearing from the forum for a while, i need a break from this whole nightmare.  When i am refreshed and feel ready, i want to return to help other people who are going through what i experienced.  :)
  • pammal2019
    pammal2019 Member Posts: 4 Listener
    I won both my ESA and Pip tribunals and had my money refunded, you would think that when you have degenerative conditions they would stop hounding you but they don't, I've just received another ESA questionnaire which will lead to another assessment, I have Osteoarthritis in both knees, both hips and my lumbar spine, also I have urge incontinence, anxiety and depression, everything seems to worsen with the stress this creates.
  • poppy123456
    poppy123456 Member Posts: 23,733 Disability Gamechanger
    I won both my ESA and Pip tribunals and had my money refunded, you would think that when you have degenerative conditions they would stop hounding you but they don't, I've just received another ESA questionnaire which will lead to another assessment, I have Osteoarthritis in both knees, both hips and my lumbar spine, also I have urge incontinence, anxiety and depression, everything seems to worsen with the stress this creates.
    Hi,

    Unfortunately, for ESA you can be re-assessed anytime from 3 months. Knowing the reasons why you were placed into the group you were placed into will help you with the review, this way you can concentrate on those reasons why filling out the form.

    Make sure you send evidence to support your claim because they rarely contact anyone for this.

    Also make sure that the form is returned no later than the date stated on the letter. Failure to return it on time could see you being found fit for work for failing to return the form. There's no extension of time for returning the ESA50 form.

    Good luck.
  • zakblood
    zakblood Member Posts: 419 Pioneering
    i know how you feel and also are sorry that it seems they hound the same ill people each and every time, seems they have made some rather large mistakes as there's more than a few in the news atm, one day they will get it right and not do or feel the need to do some many, but that doesn't stop your anguish either, so good luck for the future 
  • gerrys6
    gerrys6 Member Posts: 111 Courageous
    Pammal2019
    i have osteoarthritis in both knees hands elbows shoulders and lipodeama and anxiety and depression I  live in dread of the time of year that my renewal comes its July !! And this year I’ll be getting my pip renewal at the same time so two f2f s coming up it makes my anxiety go through the roof the whole thing . 

  • thespiceman
    thespiceman Member Posts: 6,390 Disability Gamechanger
    Hello @gerrys6 Thank you for your post. Please can I ask do you have any one to support you through this?

    I am one of the team of community champions. On the forum. Just concerned and wonder is there any one.

    Who is helping you with your mental health. 

    I know with the assessments been doing them a long time.  Have and do know it is finding some support to cope through every thing.

    I myself have anxiety and depression myself.

    If that means contacting mental health charities.  Something to consider.

    Used this one last time.  

    https://www.richmondfellowship.org.uk.  Might be able to get help with floating support and help you with your mental health. Might be able also to help with your benefit situation. Usually do attend assessments.

    I know some areas do not cover. Worth finding out.

    Do accept clientele with other associated disabilities or conditions.

    Please if you need anything else.  Information, guidance on assessments .  Any questions please ask .

    Have a look on our website.  Plenty of support.

    Wish you the best for a successful outcome.

    Keep in touch.

    Take care.

    @thespiceman



    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • pammal2019
    pammal2019 Member Posts: 4 Listener
    Thankyou all for your replies, poppy12345, I have sent them letters from my Rheumatologist and Gynaecologist 3 times, do they not keep this on record? I'm in the process of changing Doctors as I get no support from them and have had to go through both tribunals alone.
  • poppy123456
    poppy123456 Member Posts: 23,733 Disability Gamechanger
    Thankyou all for your replies, poppy12345, I have sent them letters from my Rheumatologist and Gynaecologist 3 times, do they not keep this on record? I'm in the process of changing Doctors as I get no support from them and have had to go through both tribunals alone.
    I wouldn't take a gamble on them using any previous evidence you sent because it may not happen. Did you keep copies of the evidence you previously sent? I always keep my evidence in a file, this way i've always got for the reviews.
  • pammal2019
    pammal2019 Member Posts: 4 Listener
    I have no more copies, I didn't think I'd have to go through this again, what more can I do to prove I'm not fit for work? I'm 58 years old, I've never been out of work until the pain became too much, my work has always been physically demanding, I have no qualifications for any kind of work that requires little physical effort.
  • poppy123456
    poppy123456 Member Posts: 23,733 Disability Gamechanger
    Unfortunately, only those that are placed into the severe conditions group are exempt from future assessments. Everyone else has to go through these reviews regularly.

    They will assess your ability to do any type of work regardless of your qualifications. I don't know what group you're currently in but here's a link to the descriptors for both groups.



    Substantial risk for both groups explained here. http://www.cpag.org.uk/content/making-exception



  • pammal2019
    pammal2019 Member Posts: 4 Listener
    Thankyou poppy12345

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