Disabled people
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Boredom and lonliness

Helen71Helen71 Member Posts: 8 Listener
I need some pointers on how to get my life together. I'm 46 have a lovely partner but works alot .l had to give up work due to parkinsons which I didn't want to do .Now I fell myself getting more down and fed up every day. I just don't have anything to get up for anymore and I feel like I'm just wasting away.l used to be an active positive person but now I just am nothing. 


  • ellenlow17ellenlow17 Member Posts: 25 Listener
    Is there not some support groups around your area?  That would be a great start and you would probably find other groups you could join.  It might also be worthwhile contacting the social work office as they usually know what groups are around.  They usually have befriending contacts too. I hope you find something to get involved in and make friends.  You’re so  young to be isolated the way you are. Let us know if you have any luck. I hope you have a lovely Christmas x
  • Helen71Helen71 Member Posts: 8 Listener
    Thankyou its just getting the get up and go to do it..plus not driving and being out of town abit makes it more difficult. But I will try and make the effort 
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @Helen71 How are you?  I know it is not easy.  I understand that.  I am like a lot of this community in the same position.  I live on my own and trying to find help and support in my area.  What people do not realise that if you are under 30 or 60 plus plenty of things to do.  It is in between.  Welcome to the community and I hope you find support.  I have down days myself and use this forum to discuss anything that I need to say.  Everyone is so appreciated and the comments I get are so uplifting.  Whether they agree with me or not a different view or opinion makes the day.  Best wishes and support.  Please take care
    Community Champion
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  • Neil2017Neil2017 Member Posts: 157 Courageous
    Hi @Helen71
    and welcome to the forums.
    Yes I understand as a disabled person it can be difficult to motivate yourself. I myself am  visually impaired and have to plan public transport as it can be limited at certain times of the day and sometimes think is it really worth doing this if I need to pay expensive taxi fares.

    You say you have a partner. Can you not ask them to occasionally take some annual leave as a one day off, even if it is to take you initially to a support and social group?

    You say you used to work - is there anybody you still know who perhaps works part/time, who could visit you for an hour or so?

    if public transport is poor in your area is there a dial-a-ride type mini bus or coach service available? These sometimes do half day and day trips locally.

    Sometimes just doing something a little different can be motivating. Like trying a different tv programme or radio station. Subscribing to audio books service like Audible or reading a different genre of books.

    Hope some suggestions help. And have a good Christmas
  • Helen71Helen71 Member Posts: 8 Listener
    Thankyou all for your suggestions and support. Just talking to people and knowing I'm not on my own helps alot.l will certainly look into any groups in my area. 
    Wishing you all a very merry Xmas 
  • ellenlow17ellenlow17 Member Posts: 25 Listener
    I hope you have a wonderful Christmas and find some groups you like and make some new friends   X
  • secondbeesecondbee Member Posts: 23 Courageous
    Hi Helen, 

    i found going to my local library helps. There are a few people there who recognise me because we started swapping book recommendations and that’s been a great help to feeling less alone. 

    I also own a dog. Pets make great company. I know that not everyone can afford a pet, or give them the level of care that they need, but if you can, and would like to, owning a pet is great for mental health. If owning a pet isn’t for you, but you’d like to have contact with animals there are usually rescues or shelters that a desperate for people to help socialise the animals. 

    Hope these suggestions help and I’m sure the whole community is behind me when I say that if you need a friendly ear we are only a few clicks away. 

  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    Hi @Helen71, how are you doing? 
  • deb74deb74 Member Posts: 754 Pioneering
    hi helen71. like thespiceman i a lot of my spare time on here. i also have a dog who keeps me company as i live on my own. don't know what i would do without her! secondbee is right animals are such good company and they make you happy!
  • zorozoro Member Posts: 66 Courageous
    Sorry I can't be of any help but it's something I'm aware of with elderly sick disabled young people.
    So easy to be stuck in a room alone.
    I'd hate it and am not sure how I'd deal with it in your position.
    I can drive still so can get out and about and I have a very large and mostly close family.
    I'm guessing you don't drive with Parkinson's?
    My homemade music .....   thirty odd tunes ..... https://www.reverbnation.com/jackbackband
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