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Retinitis Pigmentosa

Fazola
Member Posts: 3 Listener
Hi, I'm new to the forum, so saying "Hi" to practice posting. I am blind from RP and hope to receive and give support.
Comments
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Hi again @Fazola
Welcome. RP would be short for Retinitas Pigmentosa wouldn’t it? I am visually impaired myself so have heard of people with RP. -
Hi @Fazola Welcome to the community, great to have you here.
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Hi @Fazola
Good Evening & Welcome to the crew!!!!
Please please let me know if I can help/support you in anyway????
Many thanks. -
Hi Fazola !
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Hello
I am new to here. Can someone please tell me what the Lay disallowance team is within the dwp reagrding PIP. It’s about a mandatory reconsideration of my partners claim and it’s gone to that team because it’s over 13 months. Has anyone experienced this and no what it means and what they do?
Any help would be much appreciated -
I came across this research paper which may of some interest "Seeing through their eyes: lived experiences of people with retinitis pigmentosa" at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5437327/
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I genuinely wish HCPs could be given reports like that. Lived experience really spells it out.
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