Retinitis Pigmentosa

Fazola

Hi, I'm new to the forum, so saying "Hi" to practice posting. I am blind from RP and hope to receive and give support.

Neil2017

Hi again @Fazola
Welcome. RP would be short for Retinitas Pigmentosa wouldn’t it? I am visually impaired myself so have heard of people with RP.

Alex

Hi @Fazola Welcome to the community, great to have you here.

steve51

Hi @Fazola

Good Evening & Welcome to the crew!!!!

Please please let me know if I can help/support you in anyway????

Many thanks.

Singing

Hi Fazola ! 

Adam_Alumni

Hi @Fazola,

How can we help you today?

G20199

Hello 

I am new to here. Can someone please tell me what the Lay disallowance team is within the dwp reagrding PIP. It’s about a mandatory reconsideration of my partners claim and it’s gone to that team because it’s over 13 months. Has anyone experienced this and no what it means and what they do? 

Any help would be much appreciated  

dolfrog

I came across this research paper which may of some interest "Seeing through their eyes: lived experiences of people with retinitis pigmentosa"  at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5437327/ 

mikehughescq

I genuinely wish HCPs could be given reports like that. Lived experience really spells it out.