Chronic pain help — Scope | Disability forum
New to the community? Remember to read our community guidelines and our community house rules.
Concerned about another member's safety or wellbeing? Find out how to let us know.

Chronic pain help

Qu33ni3 Member Posts: 1 Listener
I've been in cronic pain for around 20yrs now. I am sick of it i would give anything to be rid of it! Im not sure what its called or i've forgotten over the years but my spine is crumbling, seven vertbraes  have gone so far and the rest will surely follow. So this is me don't go out unless to the drs or to hospital appointments. So is there any comments or opinions or any questions?


  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,799 Disability Gamechanger
    edited January 2018
    Hi @Qu33ni3, and welcome to the community!

    So sorry to hear that you're living with chronic pain. Are you under a pain clinic at the moment? We have plenty of other community members who have chronic pain, so do feel free to get involved with our discussions and join in. You may also be interested in the Pain Concern Helpline if you'd like to talk to somebody about your experiences. 
  • Waylay
    Waylay Member Posts: 963 Pioneering
    I hear you. 10 years for me. Pain Management is really great.
  • Angiebabes2410
    Angiebabes2410 Member Posts: 70 Courageous
    I went on a 6 weeks course with the pain management programme but i got nowhere apart from a numb bum and 2 parking tickets. If you live in staffordshire or Birmingham area we could meet up
  • zoro
    zoro Member Posts: 66 Courageous
    I've had pain for around twenty years that has been ever increasing.
    The last ten years it's become quite awful.
    I have benign tumours on my spinal cord that cause me a lot of problems with pain and mobility and dropping things.
    For the last three months I haven't been able to open a packet of crisps because the fingers on my right hand have stopped working properly.
    Will they start again?
    Who knows.
    I'm on very strong opiates which help but they don't get rid of all the pain all the time that's just not possible.
    I'm going out the house less and less but I can still drive most days.
    Recently had a medical driving assessment and flew through that but at th end of the test they said in three years time they'll be calling me back and expect to see me driving an automatic.
    Not a lot I can say about reliving your pain unfortunately.
    I have been to Holland and Barrett and purchased CBD oil.
    Not noticed any increased pain relief yet but it does help me sleep at night.
    I can tell because the quilt is in the same spot in the morning and I've hardly moved.
    My homemade music .....   thirty odd tunes .....


Do you need advice on your energy costs?

Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.

Fancy a chat in our virtual coffee lounge?

Put the kettle on and have a chat in our coffee lounge with other members. We talk about hobbies, games and anything else you can think of!

Cerebral Palsy (CP) Online Cafe

Here's a new opportunity for people with CP or a similar disability (aged 20+) to get together and chat. The sessions are in partnership with CP Sport so you can find out more and meet people from both organisations.

Are you struggling?

Read our 'Coping with stress, low mood and isolation' support thread for a run-down of ideas on how to banish those blues and feel happier.

What do you think about the community?

Complete our feedback form and tell us how we can make the community a better space for you.

Information about COVID-19

If you have questions about the virus, please read our information and support which includes guidance on benefits, getting food and essentials and Cerebral Palsy.

Back to school this September?

Read tips on how to settle back in and handle any worries you or your children might be having this new term.